As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE, we have had a memorial balloon release. The balloon releases are lovely and special for all of …
If you or someone you know might be interested in becoming a conference sponsor, please let us know!
HPE siblings embrace the journey
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #gotHoPE, #sharingHoPE, awareness, conference, diagnosis, happy, holoprosencephaly, HoPE, prenatal, treacher collins
Register for the 2018 Family Conference on Holoprosencephaly
Embrace the beauty of the journey
Embrace the Journey with Harley’s family
Embracing the journey when you’ve been asked to give someone the shirt off your back
Category: Embrace the Journey, Gotta Laugh, Guest Authors, HPE Conference Tags: brandy, conference, dallas, dress, Embrace the Journey, heather, HoPE, kristy, prom, rachel, sisterhood, slider
Thumbprints on our hearts
Tag: conference
Save the Date for the 2020 Family Conference on Holoprosencephaly
Posted: February 28, 2019 by Leslie, Sammy's mom
Save the Date
Category: HPE Conference Tags: 2020, conference, Great Wolf Lodge, save the date
Always Remembered
Posted: May 13, 2018 by Leslie, Sammy's mom
As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE, we have had a memorial balloon release. The balloon releases are lovely and special for all of …
Category: Grief, HPE Conference Tags: balloons, bereaved, bubbles, celebration, conference, grieving, honor, memorial, reading of the names
Sponsorship Opportunities Available
Posted: March 26, 2018 by Leslie, Sammy's mom
If you or someone you know might be interested in becoming a conference sponsor, please let us know!
Category: Fundraising, HPE Conference Tags: conference, Great Wolf Lodge, Ohio, sponsors, sponsorship opportunities
New Friends
Posted: March 8, 2018 by Leslie, Sammy's mom
HPE siblings embrace the journey
Category: Embrace the Journey, HPE Conference Tags: #BFGIndy, conference, dalton, Embrace the Journey, happy, nick, siblings
Having HoPE will give you courage
Posted: March 7, 2018 by Leslie, Sammy's mom
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #gotHoPE, #sharingHoPE, awareness, conference, diagnosis, happy, holoprosencephaly, HoPE, prenatal, treacher collins
Registration is open!
Posted: June 15, 2017 by Leslie, Sammy's mom
Register for the 2018 Family Conference on Holoprosencephaly
Category: HPE Conference Tags: 2018, conference, family, registration
The beauty
Posted: March 5, 2017 by Leslie, Sammy's mom
Embrace the beauty of the journey
Category: Embrace the Journey, Guest Authors, HPE Conference Tags: beauty, conference, HoPE, leah, ramona, sadie
Family
Posted: March 3, 2017 by Leslie, Sammy's mom
Embrace the Journey with Harley’s family
Category: Embrace the Journey, Guest Authors, HPE Conference Tags: conference, harley, moms, tucker
Sisterhood of the Traveling Dress
Posted: March 2, 2017 by Leslie, Sammy's mom
Embracing the journey when you’ve been asked to give someone the shirt off your back
Category: Embrace the Journey, Gotta Laugh, Guest Authors, HPE Conference Tags: brandy, conference, dallas, dress, Embrace the Journey, heather, HoPE, kristy, prom, rachel, sisterhood, slider
Journey Reminder
Posted: March 2, 2017 by Leslie, Sammy's mom
Thumbprints on our hearts
Category: Embrace the Journey, Guest Authors Tags: conference, family, HPE, slider, thumbprint