As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE, we have had a memorial balloon release. The balloon releases are lovely and special for all of …
As we approach Holoprosencephaly Awareness Week on March 27-April 2, we wanted to find a special and lasting way to memorialize all of our precious children who have passed away with HPE. As you may know, at each of our Family Conferences on HPE we do a memorial balloon release, and each balloon carries a …
I know we have all heard the saying, “God won’t give you more than you can handle.” I have been told this many times by people over the last 12 years. Twelve years ago, at the age of 24, I gave birth to Quinton. I was scared to death when this 11lb, 2ft long bundle …