Archives


Always Remembered

As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE,…

Read More

A lasting memorial

As we approach Holoprosencephaly Awareness Week on March 27-April 2, we wanted to find a special and lasting way to memorialize all of our precious children who have passed away with HPE. As you may know, at each of our…

Read More

God won’t give you…..

I know we have all heard the saying, “God won’t give you more than you can handle.” I have been told this many times by people over the last 12 years.  Twelve years ago, at the age of 24, I…

Read More