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Tag: celebration

Fun on St Patty’s Day

Every March 17, St. Patrick’s Day is celebrated with parades, parties, and a lot of green. This date marks the death of Saint Patrick, the Patron Saint of Ireland. … Today, the holiday has evolved to become a secular celebration of Irish culture. Green garb, leprechauns, pinching, drinking, partying, parades, more drinking. With all this celebrating how can we include our …

Always Remembered

As we approach the 2018 Family Conference on Holoprosencephaly, we want to share with you how we will honor and remember those we love who have passed away with HPE. As you may know, at each of our past family conferences on HPE, we have had a memorial balloon release. The balloon releases are lovely and special for all of …

13 Days of HoPE . . .

Some of our most-viewed blog entries came in 2010 when we shared “The 13 Days of Arthur“, written by Melissa Mouzin-Bennett, Arthur’s mom.  While Arthur lived only 13 days, his impact continues to be felt in the lives of his family and the hearts of those who will read Melissa’s words. Please join with us …