HPE siblings embrace the journey
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #gotHoPE, #sharingHoPE, awareness, conference, diagnosis, happy, holoprosencephaly, HoPE, prenatal, treacher collins
Register for the 2018 Family Conference on Holoprosencephaly
Embrace the beauty of the journey
Embrace the Journey with Harley’s family
Embracing the journey when you’ve been asked to give someone the shirt off your back
Category: Embrace the Journey, Gotta Laugh, Guest Authors, HPE Conference Tags: brandy, conference, dallas, dress, Embrace the Journey, heather, HoPE, kristy, prom, rachel, sisterhood, slider
Thumbprints on our hearts
An HPE mom shares how she has embraced the journey with HPE
In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE. Held biennially, the conference is a collaborative endeavor among Families for HoPE, the Carter Centers for Research in Holoprosencephaly, Texas Scottish Rite Hospital for Children and National Institutes …
Written by James Pruitt, HPE Dad
Tag: conference
New Friends
Posted: March 8, 2018 by Leslie, Sammy's mom
HPE siblings embrace the journey
Category: Embrace the Journey, HPE Conference Tags: #BFGIndy, conference, dalton, Embrace the Journey, happy, nick, siblings
Having HoPE will give you courage
Posted: March 7, 2018 by Leslie, Sammy's mom
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #gotHoPE, #sharingHoPE, awareness, conference, diagnosis, happy, holoprosencephaly, HoPE, prenatal, treacher collins
Registration is open!
Posted: June 15, 2017 by Leslie, Sammy's mom
Register for the 2018 Family Conference on Holoprosencephaly
Category: HPE Conference Tags: 2018, conference, family, registration
The beauty
Posted: March 5, 2017 by Leslie, Sammy's mom
Embrace the beauty of the journey
Category: Embrace the Journey, Guest Authors, HPE Conference Tags: beauty, conference, HoPE, leah, ramona, sadie
Family
Posted: March 3, 2017 by Leslie, Sammy's mom
Embrace the Journey with Harley’s family
Category: Embrace the Journey, Guest Authors, HPE Conference Tags: conference, harley, moms, tucker
Sisterhood of the Traveling Dress
Posted: March 2, 2017 by Leslie, Sammy's mom
Embracing the journey when you’ve been asked to give someone the shirt off your back
Category: Embrace the Journey, Gotta Laugh, Guest Authors, HPE Conference Tags: brandy, conference, dallas, dress, Embrace the Journey, heather, HoPE, kristy, prom, rachel, sisterhood, slider
Journey Reminder
Posted: March 2, 2017 by Leslie, Sammy's mom
Thumbprints on our hearts
Category: Embrace the Journey, Guest Authors Tags: conference, family, HPE, slider, thumbprint
Embrace the Journey with Carol-Lynn
Posted: February 27, 2017 by Leslie, Sammy's mom
An HPE mom shares how she has embraced the journey with HPE
Category: Embrace the Journey, Guest Authors, HPE Conference Tags: carol-lynn, conference, dallas, Embrace the Journey, holoprosencephaly, HPE, Jody, slider
Journey of HoPE to Dallas
Posted: February 24, 2017 by Leslie, Sammy's mom
In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE. Held biennially, the conference is a collaborative endeavor among Families for HoPE, the Carter Centers for Research in Holoprosencephaly, Texas Scottish Rite Hospital for Children and National Institutes …
Category: Embrace the Journey, HPE Conference Tags: Carter Centers, conference, dallas, Embrace the Journey, NIH, police, scottish rite, shooting, Texas scottish rite hospital
How Families for HoPE has saved my family
Posted: August 22, 2016 by Leslie, Sammy's mom
Written by James Pruitt, HPE Dad
Category: Guest Authors, HPE Conference Tags: conference, dad, emily, james, pruitt