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Tag: conference

Journey of HoPE to Dallas

In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE.  Held biennially, the conference is a collaborative endeavor among Families for HoPE, the Carter Centers for Research in Holoprosencephaly, Texas Scottish Rite Hospital for Children and National Institutes …

Conference Workshops 

Do It Yourself Sensory Ideas – Come learn about our sensory system and its role in development and daily activities. Come find your sensory preferences. Families will work together to create, try and share sensory activities that can be used in the home. Goals, goals, goals – Bring your child’s IEP (goal plan for school). …

2016 Conference Registration Frequently Asked Questions

2016 Conference FAQ Q:  If I pay online for the conference fee, do I still need to complete the separate registration form and mail or email to Roxanne Steele/Families for HoPE? A:  Yes, each family needs to complete a registration form.  If you pay your registration fee online, you will receive a confirmation reminding you …

Registration is open for 2016 Family Conference on HPE

We want you to join us as A Family of HoPE at the 2016 Family Conference on Holoprosencephaly in Dallas, Texas on July 12-15 presented by Families for HoPE, Inc. and Carter Centers for Brain Research in Holoprosencephaly and Related Malformations. This conference is for families and persons who are affected by HPE, their extended …

2016 Family Conference on Holoprosencephaly

Save the dates of July 12-15, 2016 for the next Family Conference on Holoprosencephaly sponsored by Families for HoPE, Inc. in collaboration with the Carter Centers for Brain Research in Holoprosencephaly and Related Malformations! Families for HoPE is thrilled to make a return visit to the great state of Texas in 2016. Just as in …

2014 Family Conference on HPE

The 2014 Family Conference on HPE was held in Dallas, Texas on October 2-4.  Held at the Texas Scottish Rite Hospital for Children Conference Center, over 60 HPE families gathered for the conference sponsored by Families for HoPE in collaboration with the Carter Center for Research in Holoprosencephaly and Related Malformations.  

With Sympathy – Nancy Bleggi

With great sadness, we share the news of the passing of Nancy Bleggi, following a struggle with cancer. Nancy remains one of our beloved HPE moms and has been a source of encouragement and education for countless HPE families over three decades.  Nancy and her husband, Scott entered our HPE community following the birth of …

Save the Date for the 2014 Family Conference on HPE

Well, the wait is over! Grab your family calendar and save the dates! We want to invite you and your family to Dallas, Texas on October 2-4, 2014 for our 2014 Conference: “HoPE in the Heart of Texas”. The conference is a collaboration between Families for HoPE and the Carter Centers for Brain Research in …