Tag: conference
Do It Yourself Sensory Ideas – Come learn about our sensory system and its role in development and daily activities. Come find your sensory preferences. Families will work together to create, try and share sensory activities that can be used in the home. Goals, goals, goals – Bring your child’s IEP (goal plan for school). …
2016 Conference FAQ Q: If I pay online for the conference fee, do I still need to complete the separate registration form and mail or email to Roxanne Steele/Families for HoPE? A: Yes, each family needs to complete a registration form. If you pay your registration fee online, you will receive a confirmation reminding you …
We want you to join us as A Family of HoPE at the 2016 Family Conference on Holoprosencephaly in Dallas, Texas on July 12-15 presented by Families for HoPE, Inc. and Carter Centers for Brain Research in Holoprosencephaly and Related Malformations. This conference is for families and persons who are affected by HPE, their extended …
Families for HoPE announces exciting news
Save the dates of July 12-15, 2016 for the next Family Conference on Holoprosencephaly sponsored by Families for HoPE, Inc. in collaboration with the Carter Centers for Brain Research in Holoprosencephaly and Related Malformations! Families for HoPE is thrilled to make a return visit to the great state of Texas in 2016. Just as in …
The 2014 Family Conference on HPE was held in Dallas, Texas on October 2-4. Held at the Texas Scottish Rite Hospital for Children Conference Center, over 60 HPE families gathered for the conference sponsored by Families for HoPE in collaboration with the Carter Center for Research in Holoprosencephaly and Related Malformations.
With great sadness, we share the news of the passing of Nancy Bleggi, following a struggle with cancer. Nancy remains one of our beloved HPE moms and has been a source of encouragement and education for countless HPE families over three decades. Nancy and her husband, Scott entered our HPE community following the birth of …
Well, the wait is over! Grab your family calendar and save the dates! We want to invite you and your family to Dallas, Texas on October 2-4, 2014 for our 2014 Conference: “HoPE in the Heart of Texas”. The conference is a collaboration between Families for HoPE and the Carter Centers for Brain Research in …
Please visit http://www.FamiliesforHoPE.org for the registration form and information about the 2012 Family Conference on Holoprosencephaly!
Hi my name is Molly Johnson, and I want to tell everyone a story about how my family, husband Jason, daughter Marissa and my mom Pat, all made it to the 2010 Conference on Holoprosencephaly in Maryland. We live in Washington state, and we had never met or talked with any family who has a …
Tag: conference
Conference Workshops
Posted: June 3, 2016 by Leslie, Sammy's mom
Do It Yourself Sensory Ideas – Come learn about our sensory system and its role in development and daily activities. Come find your sensory preferences. Families will work together to create, try and share sensory activities that can be used in the home. Goals, goals, goals – Bring your child’s IEP (goal plan for school). …
Category: HPE Conference Tags: conference
2016 Conference Registration Frequently Asked Questions
Posted: January 14, 2016 by Leslie, Sammy's mom
2016 Conference FAQ Q: If I pay online for the conference fee, do I still need to complete the separate registration form and mail or email to Roxanne Steele/Families for HoPE? A: Yes, each family needs to complete a registration form. If you pay your registration fee online, you will receive a confirmation reminding you …
Category: HPE Conference Tags: 2016, answers, conference, FAQ, questions, registration
Registration is open for 2016 Family Conference on HPE
Posted: January 12, 2016 by Leslie, Sammy's mom
We want you to join us as A Family of HoPE at the 2016 Family Conference on Holoprosencephaly in Dallas, Texas on July 12-15 presented by Families for HoPE, Inc. and Carter Centers for Brain Research in Holoprosencephaly and Related Malformations. This conference is for families and persons who are affected by HPE, their extended …
Category: HPE Conference Tags: conference, dallas, holoprosencephaly, HPE, siblings
2016 Conference Announcement
Posted: November 23, 2015 by Leslie, Sammy's mom
Families for HoPE announces exciting news
Category: HPE Conference Tags: conference, hotel, prom, registration
2016 Family Conference on Holoprosencephaly
Posted: March 24, 2015 by Leslie, Sammy's mom
Save the dates of July 12-15, 2016 for the next Family Conference on Holoprosencephaly sponsored by Families for HoPE, Inc. in collaboration with the Carter Centers for Brain Research in Holoprosencephaly and Related Malformations! Families for HoPE is thrilled to make a return visit to the great state of Texas in 2016. Just as in …
Category: Fundraising, HPE Conference Tags: conference, dallas, Texas scottish rite hospital
2014 Family Conference on HPE
Posted: October 23, 2014 by Leslie, Sammy's mom
The 2014 Family Conference on HPE was held in Dallas, Texas on October 2-4. Held at the Texas Scottish Rite Hospital for Children Conference Center, over 60 HPE families gathered for the conference sponsored by Families for HoPE in collaboration with the Carter Center for Research in Holoprosencephaly and Related Malformations.
Category: HPE Conference Tags: Carter Centers, conference, holoprosencephaly, Texas scottish rite hospital
With Sympathy – Nancy Bleggi
Posted: August 23, 2014 by Leslie, Sammy's mom
With great sadness, we share the news of the passing of Nancy Bleggi, following a struggle with cancer. Nancy remains one of our beloved HPE moms and has been a source of encouragement and education for countless HPE families over three decades. Nancy and her husband, Scott entered our HPE community following the birth of …
Category: Grief Tags: bleggi, conference, gina, sympathy
Save the Date for the 2014 Family Conference on HPE
Posted: November 1, 2013 by Leslie, Sammy's mom
Well, the wait is over! Grab your family calendar and save the dates! We want to invite you and your family to Dallas, Texas on October 2-4, 2014 for our 2014 Conference: “HoPE in the Heart of Texas”. The conference is a collaboration between Families for HoPE and the Carter Centers for Brain Research in …
Category: HPE Conference Tags: Carter Centers, childrens hospital, conference, dallas, holoprosencephaly, HPE, save the date, scottish rite, texas
2012 Conference Registration
Posted: January 23, 2012 by Leslie, Sammy's mom
Please visit http://www.FamiliesforHoPE.org for the registration form and information about the 2012 Family Conference on Holoprosencephaly!
Category: General Tags: conference, holoprosencephaly, registration
If there is a will, there is a way
Posted: October 15, 2011 by Leslie, Sammy's mom
Hi my name is Molly Johnson, and I want to tell everyone a story about how my family, husband Jason, daughter Marissa and my mom Pat, all made it to the 2010 Conference on Holoprosencephaly in Maryland. We live in Washington state, and we had never met or talked with any family who has a …
Category: Fundraising, Guest Authors, HPE Conference Tags: conference, fundraising, Marissa, Molly