2016 Family Conference on Holoprosencephaly
Save the dates of July 12-15, 2016 for the next Family Conference on Holoprosencephaly sponsored by Families for HoPE, Inc. in collaboration with the Carter Centers for Brain Research in Holoprosencephaly and Related Malformations!
Families for HoPE is thrilled to make a return visit to the great state of Texas in 2016. Just as in 2014, the conference will be held at the Texas Scottish Rite Hospital for Children in Dallas, Texas. We are making arrangements with the same hotel–Homewood Suites by Hilton–and rumor has it that our friend Louis the Duck has cleared his calendar for our visit!
While there are still many details to be worked out and hurdles to clear, it is our hope that fundraising efforts will allow us to offer multiple scholarship opportunities for families who otherwise might not be able to attend due to the expenses of travel and lodging. It is a lofty goal and will require a concerted effort by all to help raise these funds, but if we can do HPE, we can do anything!
If you would like to be involved in the planning or fundraising for the 2016 conference, please contact Leslie Harley at Leslie@FamiliesforHoPE.org.
Stay tuned for more information in the coming weeks!
Leslie,
I am excited and would really like to share Myracle’s story.
The book is now available.
http://Www.outskirtspress.com/myraclesjourney.
My website is:
http://Www.outskirtspress.com/myraclesjourney
Leslie,
I would like to be involved inthe conference planning and also promote my book during the event.
Thanks very much.
Regina Woodard Cannon
678-641-9363
P.O.Box 272
Coden, Al 36523
how do you get invited to or registered for this
There is a register button you can click on
We are New Zealand HoPE grandparents and would love to come to Conference with our family in 2016….will start saving now! We would really like to meet other families who live with HoPE…
How can a person get involved in this? I’d like to possibly volunteer if such a thing is needed. I am not a family member of a HoPE darling, but I was a home health nurse for one amazing little boy and I am forever changed and want to learn more.
I can’t wait