The Family Conference on Holoprosencephaly is the only conference in existence focusing on the topic of HPE, and this conference continues to be a model among rare disorders in that it brings 100+ affected families together with leading research scientists and clinicians. Attendees representing multiple countries come together to focus on daily living skills, medical needs and scientific research progress. Your sponsorship of this remarkable event will have a lasting impact on bringing hope to the lives of the children and families who attend this conference.
For these families, this event is more than just a conference. It is the pinnacle in their journeys of HoPE; it is their symbolic Mount Everest. The medical community at large receives minimal clinical education about HPE, so parents become the “experts” in HPE. This conference further empowers them with increased knowledge and understanding of the science behind the diagnosis; yet, also addresses the hope that exists beyond the heartbreak.
We are seeking sponsors for the 2018 Family Conference on HPE. To request a copy of our sponsorship proposal, please contact me at Josh@FamiliesforHoPE.org or Leslie Harley at Leslie@FamiliesforHoPE.org.
President of the Board of Directors
Families for HoPE, Inc.