Pearl Joy Brown
Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.
Posted: January 23, 2018 by Leslie, Sammy's mom
Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.
Category: Child of HoPE, Guest Authors, Inspiration, Perspectives Tags: eric brown, eric brown photography, holoprosencephaly, HoPE, life, pearl joy brown, ruth
Posted: January 13, 2018 by CharlieDawns momma
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Category: Guest Authors Tags: #holoprosencephaly #hope, diagnosis, disability, Embrace the Journey, happy, holoprosencephaly, HoPE, HPE, journey, laughter, special needs
Posted: March 1, 2017 by CharlieDawns momma
Embrace the Journey with Hercules
Category: Embrace the Journey, Guest Authors Tags: allegiant airlines, ana vindas, hercules, holoprosencephaly, HoPE, HPE, journey, pilot, plane, Service dog
Posted: February 27, 2017 by CharlieDawns momma
An HPE mom shares how she has embraced the journey with HPE
Category: Embrace the Journey, Guest Authors, HPE Conference Tags: carol-lynn, conference, dallas, Embrace the Journey, holoprosencephaly, HPE, Jody, slider
Posted: September 30, 2016 by Leslie, Sammy's mom
New NIH study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this new environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation …
Category: Research Tags: environmental, holoprosencephaly, HPE, NIH, pregnancy, study, survey
Posted: January 12, 2016 by Leslie, Sammy's mom
We want you to join us as A Family of HoPE at the 2016 Family Conference on Holoprosencephaly in Dallas, Texas on July 12-15 presented by Families for HoPE, Inc. and Carter Centers for Brain Research in Holoprosencephaly and Related Malformations. This conference is for families and persons who are affected by HPE, their extended …
Category: HPE Conference Tags: conference, dallas, holoprosencephaly, HPE, siblings
Posted: November 30, 2015 by Leslie, Sammy's mom
#GivingTuesday is a movement to create a national day of giving on the Tuesday following Thanksgiving, Black Friday and Cyber Monday. On #GivingTuesday, please join Families for HoPE in helping to share the HoPE in Holoprosencephaly. We would love for you to join us with your time, talents, and personality to share the HoPE in …
Category: #GivingTuesday, Fundraising Tags: #givingtuesday, holoprosencephaly, HoPE
Posted: November 3, 2015 by CharlieDawns momma
For a limited time only there is toddler sizes, onsies and hoodies!! Order toddler shirts here
Category: Fundraising Tags: holoprosencephaly, hoodies, onsies, shirts, toddlers
Posted: October 18, 2015 by Leslie, Sammy's mom
Category: Racing for HoPE Tags: Cavins, CRA, Hannah, holoprosencephaly, Josh Timmerman, lucas oil raceway, racing, racing for HoPE
Posted: August 22, 2015 by Leslie, Sammy's mom
Category: Racing for HoPE Tags: ARCA/CRA, baer field speedway, holoprosencephaly, HPE, Josh Timmerman, liam, racing for HoPE, rempel