Tag: holoprosencephaly
On August 11-14, the 2024 Conference on Holoprosencephaly is expanding its reach by convening in a virtual space, allowing access to families from around the world! Register to join this free and exciting, first-time event.
Seventeen-year-old Kal-El Wright enjoys many things, including going to school.
Danielle Monson calls her two-and-a-half-year-old daughter Raelea a miracle. Raelea was born, after Danielle and her husband Zachary had tried to have a baby for thirteen years.
A dad has special dreams of enjoying good times with their son – from pitching a baseball or football or walking the dog together to hitting the local skateboard park. No dad envisions their son receiving a life-changing diagnosis or almost losing that beloved child twice.
Our daughter Grace Inez was a blue-eyed beauty with long eyelashes, perfect eyebrows, and the cutest dimple in her chin. Her captivating smile lit up every room she was in. Her laugh was contagious, and her sweet voice was music to our ears.
PARENTS FIND HOPE AND PURPOSE, INSPITE OF BEING GIVEN NONE
Members of the medical community still say HPE is incompatible with life, but our stories say otherwise.
Michelle Modula Duffo and her husband Jose had tried to get pregnant for seven years, before turning to IVF. Michelle and Jose were thrilled with the success of the process and looked forward to welcoming their child.
Order by MARCH 5 to receive in time for HPE Awareness Week
We are excited to announce that ShopRaise will make a $5.00 Bonus Donation* to Families for HoPE when you shop using the ShopRaise app for your first order over $50.00. This is a limited time offer. Please get the app and start shopping at over 1,200 retailers to support our mission. Every dollar raised will make …
Families for HoPE is excited to welcome all newly expectant moms and dads with an HPE diagnosis to our 2024 Wednesday Night Check-In on Zoom!
It’s that time of the year again! Enter your child with HPE or family in our annual Halloween costume contest!
Tag: holoprosencephaly
Virtual Conference on HPE is almost here!
Posted: August 4, 2024 by Leslie, Sammy's mom
On August 11-14, the 2024 Conference on Holoprosencephaly is expanding its reach by convening in a virtual space, allowing access to families from around the world! Register to join this free and exciting, first-time event.
Category: HPE Conference Tags: conference, holoprosencephaly, registration, virtual
AMBASSADOR FOR HoPE – Kal-El Wright
Posted: June 13, 2024 by lyndot71
Seventeen-year-old Kal-El Wright enjoys many things, including going to school.
Category: Ambassadors for HoPE, Anchors of HoPE, Child of HoPE Tags: ambassador for hope, holoprosencephaly, Kal-El, superman, wright
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
Posted: March 29, 2024 by lyndot71
Danielle Monson calls her two-and-a-half-year-old daughter Raelea a miracle. Raelea was born, after Danielle and her husband Zachary had tried to have a baby for thirteen years.
Category: Child of HoPE, Holoprosencephaly Awareness Week Tags: danielle, holoprosencephaly, monson, prental diagnosis, raelae, zachary
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
Posted: March 28, 2024 by lyndot71
A dad has special dreams of enjoying good times with their son – from pitching a baseball or football or walking the dog together to hitting the local skateboard park. No dad envisions their son receiving a life-changing diagnosis or almost losing that beloved child twice.
Category: Child of HoPE, Holoprosencephaly Awareness Week, Inspiration Tags: #familiesforhope, #TeamHoPE, 2024 HPE Awareness Week, brewer, holoprosencephaly, maddox brewer
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
Posted: March 27, 2024 by lyndot71
Our daughter Grace Inez was a blue-eyed beauty with long eyelashes, perfect eyebrows, and the cutest dimple in her chin. Her captivating smile lit up every room she was in. Her laugh was contagious, and her sweet voice was music to our ears.
Category: Child of HoPE, Grief, Holoprosencephaly Awareness Week, Inspiration Tags: #hpeawareness, 2024 HPE Awareness Week, families for hope, grace, grace inez, holoprosencephaly, HoPE
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
Posted: March 25, 2024 by lyndot71
PARENTS FIND HOPE AND PURPOSE, INSPITE OF BEING GIVEN NONE
Members of the medical community still say HPE is incompatible with life, but our stories say otherwise.
Michelle Modula Duffo and her husband Jose had tried to get pregnant for seven years, before turning to IVF. Michelle and Jose were thrilled with the success of the process and looked forward to welcoming their child.
Category: Child of HoPE, Holoprosencephaly Awareness Week, Inspiration, Perspectives, Prenatal Diagnosis Tags: holoprosencephaly, HoPE, hpe awareness week, prenatal diagnosis, stories
HoPE U T-Shirts – Order by March 8
Posted: February 28, 2024 by Leslie, Sammy's mom
Order by MARCH 5 to receive in time for HPE Awareness Week
Category: Fundraising, Holoprosencephaly Awareness Week Tags: #hpeawareness, awareness, education, holoprosencephaly, HoPE U, medical, t-shirt
Shop Over 1,200 Retailers and Raise for Families for HoPE
Posted: February 12, 2024 by lyndot71
We are excited to announce that ShopRaise will make a $5.00 Bonus Donation* to Families for HoPE when you shop using the ShopRaise app for your first order over $50.00. This is a limited time offer. Please get the app and start shopping at over 1,200 retailers to support our mission. Every dollar raised will make …
Category: Fundraising Tags: #familiesforhope, #hpeawareness, #shopraise, holoprosencephaly, HoPE
HoPE in the Waiting for Expectant Parents
Posted: January 17, 2024 by Leslie, Sammy's mom
Families for HoPE is excited to welcome all newly expectant moms and dads with an HPE diagnosis to our 2024 Wednesday Night Check-In on Zoom!
Category: Prenatal Diagnosis Tags: dad, diagnosis, holoprosencephaly, mom, pregnancy, prenatal, seeking hope, support
2023 Costume Contest
Posted: October 30, 2023 by Leslie, Sammy's mom
It’s that time of the year again! Enter your child with HPE or family in our annual Halloween costume contest!
Category: Fundraising, Holidays Tags: annual, contest, costume, halloween, holoprosencephaly