Archives


HoPE and the One Percenters

Please enjoy this YouTube video created by Rob Myers, Gabby’s dad, on #GivingTuesday. Thank you so much to Rob, Heidi, and Gabby for your commitment, support, and inspiration.  

Read More

Thank you, thank you, thank you!

Thank you to Barb Brown for your $15 donation to Families for HoPE on #GivingTuesday! Thank you to Jane Merdic for your $15 donation on #GivingTuesday to Families for HoPE. So pleased and grateful to Mary Gamache for your $100…

Read More

2014 Family Conference on HPE

The 2014 Family Conference on HPE was held in Dallas, Texas on October 2-4.  Held at the Texas Scottish Rite Hospital for Children Conference Center, over 60 HPE families gathered for the conference sponsored by Families for HoPE in collaboration…

Read More

The J.P. Story

This is a great blog written by a dad about one of our HPE families in Florida. http://navigatinglifesdetours.com/2014/08/30/the-j-p-story-uncertainty-before-birth/

Read More

May 31 – Racing for HoPE 2014

Read More

Bye!

Read More

Racing for HoPE 2014

It is time again for the #09 Families for HoPE race car to hit the track for the 2014 racing season. This is the 8th year that short-track racer Josh Timmerman has provided space on his Chevy Late Model to…

Read More

Faces of HoPE

Read More

Meet Abigail

(Written by Michelle Alexander) 13 years ago, I laid bleeding to death. I had just seen my only baby girl for the first time without the fuzziness of an ultrasound. She was beautiful. For 7 hours, I laid in recovery…

Read More

Meet Mary and Robert

(Submitted by Pat Wright) HPE is not a rare disorder in our immediate family, 50% of the children have HPE, and it has not prematurely taken the lives of the affected children, as one is 32-years old and the other…

Read More

Songs for your journey of HoPE

Music often helps us get through different phases in our lives. We want to know what kind of music HPE families listen to, as they experience different moods. We have created some playlists on the Families for HoPE Pinterest board for different moods/themes!…

Read More

March 10-16 is Holoprosencephaly Awareness Week!

March 10-16 has been designated as Holoprosencephaly Awareness Week! Over the course of the next several days, we would ask that you look for opportunities to share the HoPE you’ve found in Holoprosencephaly.  Use your favorite social media accounts to…

Read More

#GivingTuesday The countdown is on!

 

Read More

Save the Date for the 2014 Family Conference on HPE

Well, the wait is over! Grab your family calendar and save the dates! We want to invite you and your family to Dallas, Texas on October 2-4, 2014 for our 2014 Conference: “HoPE in the Heart of Texas”. The conference…

Read More

Fishing for HoPE 2013

Families for HoPE President Ed Tierney (Maeve’s dad) reports on the fishing tournament he hosted as a fundraiser benefiting Families for HoPE. Thank you so very much to you and your hard-working team of volunteers. Great job, Ed!

Read More