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Tag: holoprosencephaly

New NIH Study on Environmental Determinants of Holoprosencephaly

New NIH study on Environmental Determinants of Holoprosencephaly  We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this new environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation …

Registration is open for 2016 Family Conference on HPE

We want you to join us as A Family of HoPE at the 2016 Family Conference on Holoprosencephaly in Dallas, Texas on July 12-15 presented by Families for HoPE, Inc. and Carter Centers for Brain Research in Holoprosencephaly and Related Malformations. This conference is for families and persons who are affected by HPE, their extended …

#GivingTuesday 2015

#GivingTuesday is a movement to create a national day of giving on the Tuesday following Thanksgiving, Black Friday and Cyber Monday. On #GivingTuesday, please join Families for HoPE in helping to share the HoPE in Holoprosencephaly. We would love for you to join us with your time, talents, and personality to share the HoPE in …