Updated on March 17, 2017 by CharlieDawns momma
Embrace the Journey with Hercules
Category: Embrace the Journey, Guest Authors Tags: allegiant airlines, ana vindas, hercules, holoprosencephaly, HoPE, HPE, journey, pilot, plane, Service dog
Updated on March 17, 2017 by CharlieDawns momma
An HPE mom shares how she has embraced the journey with HPE
Updated on September 30, 2016 by Leslie, Sammy's mom
New NIH study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this new environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation …
Updated on January 29, 2017 by Leslie, Sammy's mom
We want you to join us as A Family of HoPE at the 2016 Family Conference on Holoprosencephaly in Dallas, Texas on July 12-15 presented by Families for HoPE, Inc. and Carter Centers for Brain Research in Holoprosencephaly and Related Malformations. This conference is for families and persons who are affected by HPE, their extended …
Updated on January 12, 2016 by Leslie, Sammy's mom
#GivingTuesday is a movement to create a national day of giving on the Tuesday following Thanksgiving, Black Friday and Cyber Monday. On #GivingTuesday, please join Families for HoPE in helping to share the HoPE in Holoprosencephaly. We would love for you to join us with your time, talents, and personality to share the HoPE in …
Updated on December 1, 2015 by CharlieDawns momma
For a limited time only there is toddler sizes, onsies and hoodies!! Order toddler shirts here
Updated on October 18, 2015 by Leslie, Sammy's mom
Posted on August 22, 2015 by Leslie, Sammy's mom
Posted on June 6, 2015 by Leslie, Sammy's mom
Tag: holoprosencephaly
Hercules’ Journey
Updated on March 17, 2017 by CharlieDawns momma
Embrace the Journey with Hercules
Category: Embrace the Journey, Guest Authors Tags: allegiant airlines, ana vindas, hercules, holoprosencephaly, HoPE, HPE, journey, pilot, plane, Service dog
Embrace the Journey with Carol-Lynn
Updated on March 17, 2017 by CharlieDawns momma
An HPE mom shares how she has embraced the journey with HPE
Category: Embrace the Journey, Guest Authors, HPE Conference Tags: carol-lynn, conference, dallas, Embrace the Journey, holoprosencephaly, HPE, Jody, slider
New NIH Study on Environmental Determinants of Holoprosencephaly
Updated on September 30, 2016 by Leslie, Sammy's mom
New NIH study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this new environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation …
Category: Research Tags: environmental, holoprosencephaly, HPE, NIH, pregnancy, study, survey
Registration is open for 2016 Family Conference on HPE
Updated on January 29, 2017 by Leslie, Sammy's mom
We want you to join us as A Family of HoPE at the 2016 Family Conference on Holoprosencephaly in Dallas, Texas on July 12-15 presented by Families for HoPE, Inc. and Carter Centers for Brain Research in Holoprosencephaly and Related Malformations. This conference is for families and persons who are affected by HPE, their extended …
Category: HPE Conference Tags: conference, dallas, holoprosencephaly, HPE, siblings
#GivingTuesday 2015
Updated on January 12, 2016 by Leslie, Sammy's mom
#GivingTuesday is a movement to create a national day of giving on the Tuesday following Thanksgiving, Black Friday and Cyber Monday. On #GivingTuesday, please join Families for HoPE in helping to share the HoPE in Holoprosencephaly. We would love for you to join us with your time, talents, and personality to share the HoPE in …
Category: #GivingTuesday, Fundraising Tags: #givingtuesday, holoprosencephaly, HoPE
Spread the word
Updated on December 1, 2015 by CharlieDawns momma
For a limited time only there is toddler sizes, onsies and hoodies!! Order toddler shirts here
Category: Fundraising Tags: holoprosencephaly, hoodies, onsies, shirts, toddlers
October 18 – Racing for HoPE 2015
Updated on October 18, 2015 by Leslie, Sammy's mom
Category: Racing for HoPE Tags: Cavins, CRA, Hannah, holoprosencephaly, Josh Timmerman, lucas oil raceway, racing, racing for HoPE
August 22 – Racing for HoPE 2015
Posted on August 22, 2015 by Leslie, Sammy's mom
Category: Racing for HoPE Tags: ARCA/CRA, baer field speedway, holoprosencephaly, HPE, Josh Timmerman, liam, racing for HoPE, rempel
June 6 – Racing for HoPE 2015
Posted on June 6, 2015 by Leslie, Sammy's mom
Category: Racing for HoPE Tags: 2015, elizabeth, holoprosencephaly, racing for HoPE
HoPE has supernatural powers
Updated on March 27, 2015 by Leslie, Sammy's mom
Category: Holoprosencephaly Awareness Week 2015, Inspiration Tags: awareness, holoprosencephaly, holoprosencephaly awareness week, HoPE