Please feel free to download and share these items on social media to help raise awareness of HPE during Holoprosencephaly Awareness Week 2015, March 23-29.
Please enjoy this YouTube video created by Rob Myers, Gabby’s dad, on #GivingTuesday. Thank you so much to Rob, Heidi, and Gabby for your commitment, support, and inspiration.
Thank you to Barb Brown for your $15 donation to Families for HoPE on #GivingTuesday! Thank you to Jane Merdic for your $15 donation on #GivingTuesday to Families for HoPE. So pleased and grateful to Mary Gamache for your $100 donation to Families for HoPE on this #GivingTuesday! Thank you so much to Betsy Jochner …
The 2014 Family Conference on HPE was held in Dallas, Texas on October 2-4. Held at the Texas Scottish Rite Hospital for Children Conference Center, over 60 HPE families gathered for the conference sponsored by Families for HoPE in collaboration with the Carter Center for Research in Holoprosencephaly and Related Malformations.
This is a great blog written by a dad about one of our HPE families in Florida. http://navigatinglifesdetours.com/2014/08/30/the-j-p-story-uncertainty-before-birth/
Category: Child of HoPE, Inspiration, Perspectives Tags: abortion, birthday, children with special needs, disabilities, family, florida hospital for children, holoprosencephaly, special needs children, the j.p. story
It is time again for the #09 Families for HoPE race car to hit the track for the 2014 racing season. This is the 8th year that short-track racer Josh Timmerman has provided space on his Chevy Late Model to help raise awareness for Holoprosencephaly (HPE). This season Josh will be racing the full-season schedule …
Tag: holoprosencephaly
June 6 – Racing for HoPE 2015
Posted: June 6, 2015 by Leslie, Sammy's mom
Category: Racing for HoPE Tags: 2015, elizabeth, holoprosencephaly, racing for HoPE
HoPE has supernatural powers
Posted: March 26, 2015 by Leslie, Sammy's mom
Category: Holoprosencephaly Awareness Week 2015, Inspiration Tags: awareness, holoprosencephaly, holoprosencephaly awareness week, HoPE
HPE Awareness Week 2015 – Social Media Tools
Posted: March 21, 2015 by Leslie, Sammy's mom
Please feel free to download and share these items on social media to help raise awareness of HPE during Holoprosencephaly Awareness Week 2015, March 23-29.
Category: Holoprosencephaly Awareness Week, Holoprosencephaly Awareness Week 2015 Tags: 2015, 2015 HPE Awareness Week, awareness, holoprosencephaly, HoPE, HPE
HoPE and the One Percenters
Posted: December 3, 2014 by Leslie, Sammy's mom
Please enjoy this YouTube video created by Rob Myers, Gabby’s dad, on #GivingTuesday. Thank you so much to Rob, Heidi, and Gabby for your commitment, support, and inspiration.
Category: #GivingTuesday, Grief, Inspiration Tags: #familiesforhope, #givingtuesday, #gotHoPE, #sharingHoPE, gabby, holoprosencephaly, one percent, video
Thank you, thank you, thank you!
Posted: December 2, 2014 by Leslie, Sammy's mom
Thank you to Barb Brown for your $15 donation to Families for HoPE on #GivingTuesday! Thank you to Jane Merdic for your $15 donation on #GivingTuesday to Families for HoPE. So pleased and grateful to Mary Gamache for your $100 donation to Families for HoPE on this #GivingTuesday! Thank you so much to Betsy Jochner …
Category: #GivingTuesday, Fundraising Tags: #givingtuesday, #sharingHoPE, holoprosencephaly, HoPE, HPE, thanks
2014 Family Conference on HPE
Posted: October 23, 2014 by Leslie, Sammy's mom
The 2014 Family Conference on HPE was held in Dallas, Texas on October 2-4. Held at the Texas Scottish Rite Hospital for Children Conference Center, over 60 HPE families gathered for the conference sponsored by Families for HoPE in collaboration with the Carter Center for Research in Holoprosencephaly and Related Malformations.
Category: HPE Conference, Leslie Tags: Carter Centers, conference, holoprosencephaly, Texas scottish rite hospital
The J.P. Story
Posted: September 10, 2014 by Leslie, Sammy's mom
This is a great blog written by a dad about one of our HPE families in Florida. http://navigatinglifesdetours.com/2014/08/30/the-j-p-story-uncertainty-before-birth/
Category: Child of HoPE, Inspiration, Perspectives Tags: abortion, birthday, children with special needs, disabilities, family, florida hospital for children, holoprosencephaly, special needs children, the j.p. story
May 31 – Racing for HoPE 2014
Posted: May 31, 2014 by Leslie, Sammy's mom
Category: Racing for HoPE Tags: holoprosencephaly, Josh Timmerman, racing for HoPE
Bye!
Posted: May 30, 2014 by Leslie, Sammy's mom
Category: Inspiration, Leslie, Milestones Tags: bye, communication, holoprosencephaly, speech, therapy
Racing for HoPE 2014
Posted: May 9, 2014 by Leslie, Sammy's mom
It is time again for the #09 Families for HoPE race car to hit the track for the 2014 racing season. This is the 8th year that short-track racer Josh Timmerman has provided space on his Chevy Late Model to help raise awareness for Holoprosencephaly (HPE). This season Josh will be racing the full-season schedule …
Category: Racing for HoPE Tags: baer field speedway, holoprosencephaly, Josh Timmerman, late model, racing for HoPE