Tag: holoprosencephaly
It’s that time of the year again! Enter your child with HPE or family in our annual Halloween costume contest!
This one-of-a-kind holiday design was created just for Families for HoPE by the aunt of one of our kiddos with HPE in Missouri.
Category: Fundraising, Holidays Tags: brain, christmas, holiday, holoprosencephaly, HPE, pajamas, pjs, santa, santa hat, tshirts
Check out our podcast series titled Families First!
Nominate a parent, caregiver or individual who exemplifies what it means to advocate for their child, their family or the HPE community, in general.
If you have a child with HPE who is in the Class of 2023, please send us a photo at info@FamiliesforHoPE.org so that we can recognize his or her accomplishment.
Today, we are celebrating our HPE community and what that community means to us. Please share how Families for HoPE and other HPE families or children with HPE have influenced your journey of HoPE.
It’s day 4 of Holoprosencephaly Awareness Week, and this is a perfect opportunity to show some creativity and put a smile on the face of another.
On day 3 of Holoprosencephaly Awareness Week, we invite you to be a storyteller. Tell the story of one of the best days ever in the life of your child or family.
Today kicks off Holoprosencephaly Awareness Week! Today’s theme is “Cover Me in Sunshine”.
In preparation for Holoprosencephaly Awareness Week, we are happy to share a template you can use on social media in coordination with the daily prompts and activities.
Tag: holoprosencephaly
2023 Costume Contest
Posted: October 30, 2023 by Leslie, Sammy's mom
It’s that time of the year again! Enter your child with HPE or family in our annual Halloween costume contest!
Category: Fundraising, Holidays Tags: annual, contest, costume, halloween, holoprosencephaly
HoPE Holiday Shirts
Posted: October 24, 2023 by Leslie, Sammy's mom
This one-of-a-kind holiday design was created just for Families for HoPE by the aunt of one of our kiddos with HPE in Missouri.
Category: Fundraising, Holidays Tags: brain, christmas, holiday, holoprosencephaly, HPE, pajamas, pjs, santa, santa hat, tshirts
Families First Podcast Series Episode One
Posted: September 7, 2023 by steveharley72
Check out our podcast series titled Families First!
Category: HPE Conference, Podcast Tags: conference, Families First, holoprosencephaly, podcast
Advocate Nominations
Posted: July 25, 2023 by Leslie, Sammy's mom
Nominate a parent, caregiver or individual who exemplifies what it means to advocate for their child, their family or the HPE community, in general.
Category: Inspiration Tags: advocate, argue, give voice, holoprosencephaly, plead, push
Class of 2023
Posted: May 15, 2023 by Leslie, Sammy's mom
If you have a child with HPE who is in the Class of 2023, please send us a photo at info@FamiliesforHoPE.org so that we can recognize his or her accomplishment.
Category: Milestones Tags: cap and gown, class of 2023, graduation, holoprosencephaly
We are Family
Posted: March 30, 2023 by Leslie, Sammy's mom
Today, we are celebrating our HPE community and what that community means to us. Please share how Families for HoPE and other HPE families or children with HPE have influenced your journey of HoPE.
Category: Holoprosencephaly Awareness Week Tags: awareness, family, holoprosencephaly, HPE, we are family
Posted: March 28, 2023 by Leslie, Sammy's mom
It’s day 4 of Holoprosencephaly Awareness Week, and this is a perfect opportunity to show some creativity and put a smile on the face of another.
Category: Holoprosencephaly Awareness Week Tags: awareness, holoprosencephaly, pocketful of sunshine
Oh, What a Night (or Day)
Posted: March 27, 2023 by Leslie, Sammy's mom
On day 3 of Holoprosencephaly Awareness Week, we invite you to be a storyteller. Tell the story of one of the best days ever in the life of your child or family.
Category: Holoprosencephaly Awareness Week Tags: awareness, best day ever, holoprosencephaly, oh what a night, storyteller
Cover Me in Sunshine
Posted: March 25, 2023 by Leslie, Sammy's mom
Today kicks off Holoprosencephaly Awareness Week! Today’s theme is “Cover Me in Sunshine”.
Category: Holoprosencephaly Awareness Week Tags: awareness, cover me in sunshine, holoprosencephaly, songs, spotify, sunglasses, yellow
Awareness Week kicks off on Saturday, March 25
Posted: March 22, 2023 by Leslie, Sammy's mom
In preparation for Holoprosencephaly Awareness Week, we are happy to share a template you can use on social media in coordination with the daily prompts and activities.
Category: Holoprosencephaly Awareness Week Tags: awareness, holoprosencephaly, HoPE, social media