Updated on March 21, 2015 by Leslie, Sammy's mom
Please feel free to download and share these items on social media to help raise awareness of HPE during Holoprosencephaly Awareness Week 2015, March 23-29.
Updated on December 3, 2014 by Leslie, Sammy's mom
Please enjoy this YouTube video created by Rob Myers, Gabby’s dad, on #GivingTuesday. Thank you so much to Rob, Heidi, and Gabby for your commitment, support, and inspiration.
Updated on December 3, 2014 by Leslie, Sammy's mom
Thank you to Barb Brown for your $15 donation to Families for HoPE on #GivingTuesday! Thank you to Jane Merdic for your $15 donation on #GivingTuesday to Families for HoPE. So pleased and grateful to Mary Gamache for your $100 donation to Families for HoPE on this #GivingTuesday! Thank you so much to Betsy Jochner …
Updated on November 23, 2014 by Leslie, Sammy's mom
The 2014 Family Conference on HPE was held in Dallas, Texas on October 2-4. Held at the Texas Scottish Rite Hospital for Children Conference Center, over 60 HPE families gathered for the conference sponsored by Families for HoPE in collaboration with the Carter Center for Research in Holoprosencephaly and Related Malformations.
Posted on September 10, 2014 by Leslie, Sammy's mom
This is a great blog written by a dad about one of our HPE families in Florida. http://navigatinglifesdetours.com/2014/08/30/the-j-p-story-uncertainty-before-birth/
Category: Child of HoPE, Inspiration, Perspectives Tags: abortion, birthday, children with special needs, disabilities, family, florida hospital for children, holoprosencephaly, special needs children, the j.p. story
Updated on June 7, 2014 by Leslie, Sammy's mom
Posted on May 30, 2014 by Leslie, Sammy's mom
Updated on May 24, 2014 by Leslie, Sammy's mom
It is time again for the #09 Families for HoPE race car to hit the track for the 2014 racing season. This is the 8th year that short-track racer Josh Timmerman has provided space on his Chevy Late Model to help raise awareness for Holoprosencephaly (HPE). This season Josh will be racing the full-season schedule …
Updated on March 16, 2014 by Leslie, Sammy's mom
Tag: holoprosencephaly
HoPE has supernatural powers
Updated on March 27, 2015 by Leslie, Sammy's mom
Category: Holoprosencephaly Awareness Week 2015, Inspiration Tags: awareness, holoprosencephaly, holoprosencephaly awareness week, HoPE
HPE Awareness Week 2015 – Social Media Tools
Updated on March 21, 2015 by Leslie, Sammy's mom
Please feel free to download and share these items on social media to help raise awareness of HPE during Holoprosencephaly Awareness Week 2015, March 23-29.
Category: Holoprosencephaly Awareness Week, Holoprosencephaly Awareness Week 2015 Tags: 2015, 2015 HPE Awareness Week, awareness, holoprosencephaly, HoPE, HPE
HoPE and the One Percenters
Updated on December 3, 2014 by Leslie, Sammy's mom
Please enjoy this YouTube video created by Rob Myers, Gabby’s dad, on #GivingTuesday. Thank you so much to Rob, Heidi, and Gabby for your commitment, support, and inspiration.
Category: #GivingTuesday, Grief, Inspiration Tags: #familiesforhope, #givingtuesday, #gotHoPE, #sharingHoPE, gabby, holoprosencephaly, one percent, video
Thank you, thank you, thank you!
Updated on December 3, 2014 by Leslie, Sammy's mom
Thank you to Barb Brown for your $15 donation to Families for HoPE on #GivingTuesday! Thank you to Jane Merdic for your $15 donation on #GivingTuesday to Families for HoPE. So pleased and grateful to Mary Gamache for your $100 donation to Families for HoPE on this #GivingTuesday! Thank you so much to Betsy Jochner …
Category: #GivingTuesday, Fundraising Tags: #givingtuesday, #sharingHoPE, holoprosencephaly, HoPE, HPE, thanks
2014 Family Conference on HPE
Updated on November 23, 2014 by Leslie, Sammy's mom
The 2014 Family Conference on HPE was held in Dallas, Texas on October 2-4. Held at the Texas Scottish Rite Hospital for Children Conference Center, over 60 HPE families gathered for the conference sponsored by Families for HoPE in collaboration with the Carter Center for Research in Holoprosencephaly and Related Malformations.
Category: HPE Conference, Leslie Tags: Carter Centers, conference, holoprosencephaly, Texas scottish rite hospital
The J.P. Story
Posted on September 10, 2014 by Leslie, Sammy's mom
This is a great blog written by a dad about one of our HPE families in Florida. http://navigatinglifesdetours.com/2014/08/30/the-j-p-story-uncertainty-before-birth/
Category: Child of HoPE, Inspiration, Perspectives Tags: abortion, birthday, children with special needs, disabilities, family, florida hospital for children, holoprosencephaly, special needs children, the j.p. story
May 31 – Racing for HoPE 2014
Updated on June 7, 2014 by Leslie, Sammy's mom
Category: Racing for HoPE Tags: holoprosencephaly, Josh Timmerman, racing for HoPE
Bye!
Posted on May 30, 2014 by Leslie, Sammy's mom
Category: Inspiration, Leslie, Milestones Tags: bye, communication, holoprosencephaly, speech, therapy
Racing for HoPE 2014
Updated on May 24, 2014 by Leslie, Sammy's mom
It is time again for the #09 Families for HoPE race car to hit the track for the 2014 racing season. This is the 8th year that short-track racer Josh Timmerman has provided space on his Chevy Late Model to help raise awareness for Holoprosencephaly (HPE). This season Josh will be racing the full-season schedule …
Category: Racing for HoPE Tags: baer field speedway, holoprosencephaly, Josh Timmerman, late model, racing for HoPE
Faces of HoPE
Updated on March 16, 2014 by Leslie, Sammy's mom
Category: Child of HoPE, Holoprosencephaly Awareness Week 2014, Inspiration Tags: #sharingHoPE, awareness, holoprosencephaly, HoPE