To celebrate day 2 of Holoprosencephaly Awareness Week, we are repeating a blog entry from October 2019 when Sarah Brown recorded Colors of the Wind in honor of our HPE community.
Hi! I’m Sarah from Leicester, England. I was diagnosed as an adult, in 2016, with Lobar HPE an Rhombencephalosynapsis. I love to sing and was honoured to be contacted by Leslie from Families for HoPE and asked if I would like to record a song for all of our HoPE children and their loved ones. …
Tag: Pocahontas
Colors of the Wind
Posted: March 25, 2023 by Leslie, Sammy's mom
To celebrate day 2 of Holoprosencephaly Awareness Week, we are repeating a blog entry from October 2019 when Sarah Brown recorded Colors of the Wind in honor of our HPE community.
Category: General, Holoprosencephaly Awareness Week Tags: awareness, colors of the wind, Pocahontas, sarah brown, song
Colors of HoPE
Posted: October 24, 2019 by Leslie, Sammy's mom
Hi! I’m Sarah from Leicester, England. I was diagnosed as an adult, in 2016, with Lobar HPE an Rhombencephalosynapsis. I love to sing and was honoured to be contacted by Leslie from Families for HoPE and asked if I would like to record a song for all of our HoPE children and their loved ones. …
Category: Guest Authors, Inspiration Tags: brown, colors, dedication, Pocahontas, sarah, song, wind