It’s almost time for Holoprosencephaly Awareness Week, and we hope you will join Families for HoPE and HPE families around the globe in this awareness raising campaign. The week will kick off on Saturday, March 25 and run through Friday, March 31!
Please help us raise $10,000 to reach, raise awareness, and educate women AND ob-gyns, geneticists, industry partners and others.
Holoprosencephaly Awareness Week is March 20-26, 2022.
New t-shirts are now available to order just in time for Holoprosencephaly Awareness Week!
Back by popular demand is Families for HoPE logowear. Choose among t-shirts (short-sleeve, long-sleeve and ladies cut) and hoodies in charcoal or navy. The front of the apparel is printed with the colorful Families for HoPE logo. Printed on the back is the first name of every child we know with HPE. At the top …
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
As HPE families, what can we do to share our HoPE and holoprosencephaly with the world?
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
Tag: awareness
Holoprosencephaly Awareness Week 2023
Posted: March 14, 2023 by Leslie, Sammy's mom
It’s almost time for Holoprosencephaly Awareness Week, and we hope you will join Families for HoPE and HPE families around the globe in this awareness raising campaign. The week will kick off on Saturday, March 25 and run through Friday, March 31!
Category: Holoprosencephaly Awareness Week Tags: #hpeawareness, awareness, holoprosencephaly, HoPE
#Giving Tuesday, November 29
Posted: November 1, 2022 by lyndot71
Please help us raise $10,000 to reach, raise awareness, and educate women AND ob-gyns, geneticists, industry partners and others.
Category: #GivingTuesday Tags: #givingtuesday, awareness, donate, give
HPE Awareness Week
Posted: February 27, 2022 by Leslie, Sammy's mom
Holoprosencephaly Awareness Week is March 20-26, 2022.
Category: Holoprosencephaly Awareness Week Tags: activities, awareness, holoprosencephaly, hpe awareness week
Awareness Shirts
Posted: February 16, 2022 by Leslie, Sammy's mom
New t-shirts are now available to order just in time for Holoprosencephaly Awareness Week!
Category: Fundraising, Holoprosencephaly Awareness Week, News Tags: awareness, friends, i'll be there for you, tshirt
Paint with HoPE
Posted: March 21, 2021 by Leslie, Sammy's mom
Category: Holoprosencephaly Awareness Week, Special Events Tags: #hpeawareness, activity, awareness, canvas, holoprosencephaly, paint, virtual
Order by February 5
Posted: January 31, 2021 by Leslie, Sammy's mom
Back by popular demand is Families for HoPE logowear. Choose among t-shirts (short-sleeve, long-sleeve and ladies cut) and hoodies in charcoal or navy. The front of the apparel is printed with the colorful Families for HoPE logo. Printed on the back is the first name of every child we know with HPE. At the top …
Category: Fundraising Tags: awareness, hoodies, logowear, share your hope, shirts, wear your hope
Roxanne Steele
Posted: July 22, 2019 by Leslie, Sammy's mom
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Category: Guest Authors, Inspiration Tags: #holoprosencephaly #hope, #sharingHoPE, awareness, disability, holoprosencephaly, HoPE, HPE, life, special needs
Walk Around The World
Posted: March 26, 2019 by Leslie, Sammy's mom
As HPE families, what can we do to share our HoPE and holoprosencephaly with the world?
Category: Fundraising, Holoprosencephaly Awareness Week Tags: #HoPEwalk2019, awareness, global, Walk, walk around the world
Never Lose HoPE
Posted: July 30, 2018 by Leslie, Sammy's mom
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
Category: Embrace the Journey, Guest Authors Tags: #familiesforhope, #holoprosencephaly #hope, #sharingHoPE, awareness, Carter Centers, diagnosis, disability, Embrace the Journey, family, holoprosencephaly, HoPE, HPE, prenatal, special needs
HPE Awareness Week
Posted: March 25, 2018 by Leslie, Sammy's mom
Holo. . . what?
Category: Holoprosencephaly Awareness Week Tags: awareness, holoprosencephaly awareness week, HoPE, HPE