Roxanne Steele
Written by Roxanne Steele Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different. Yes different races and economic factors but not anyone with any real disability.
Grandparents View
While I’m preparing to complete the 2020 conference registration for Dorothy and I, we were talking about last years event. 2018 was my second conference. The first was in 2008 when Chloe was a baby and I learned so much about HPE and about my granddaughter (pictured).
Share the HoPE in Holoprosecephaly
Words
By: Kelli Aardal Goin Words she never got to say, However communicated in a big way.
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Where we are
By Nikki Tuma Here is a little story about Kreighton that got us to where we are today.
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What HoPE means to us
What is it really…this HOPE? And why is it so important? Hope is something we can feel, but hope is also an intentional choice. Definition; hope /hōp/ a feeling of expectation and desire for a certain thing to happen.”he looked through her belongings in the hope of coming across some information” synonyms: aspiration, desire, wish, expectation, ambition, …
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More children after HPE
One mom’s story of having more children after HPE
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Never Lose HoPE
Guest Author: Melissa, Isaiah’s mom Our journey started on January 11, 2016 when we found out we we were pregnant with Isaiah. When I was 18 weeks, my primary OBGYN noticed something wrong with Isaiah’s head. He wasn’t sure what was going on, so he sent us to a maternal fetal medicine specialist. This doctor …
HPE Awareness Week
Posted: March 25, 2018 by Leslie, Sammy's mom
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Category: Holoprosencephaly Awareness Week Tags: awareness, holoprosencephaly awareness week, HoPE, HPE