Having HoPE will give you courage
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Tag: awareness
Coloring
Coloring is a hot trend for adults, and gathering a group of individuals together to color is a unique way to raise awareness of HPE! If you are interested in using coloring as a way to raise awareness of HPE and raise funds for Families for HoPE, we can help you do so. If you …
Faces of HoPE
Meet Abigail
(Written by Michelle Alexander) 13 years ago, I laid bleeding to death. I had just seen my only baby girl for the first time without the fuzziness of an ultrasound. She was beautiful. For 7 hours, I laid in recovery while my body threaten to give up. Thinking of the only real picture I had …
Meet Mary and Robert
(Submitted by Pat Wright) HPE is not a rare disorder in our immediate family, 50% of the children have HPE, and it has not prematurely taken the lives of the affected children, as one is 32-years old and the other is 23-years old. It has however taken us down a road of understanding and certainly …
Meet Maddox
Maddox’s parents–Philip and Hailey Brewer–have shared Maddox’s story in honor of Holoprosencephaly Awareness Week. Check it out by clicking on the photo below . . .
Bobby’s HoPE
March 10-16 is Holoprosencephaly Awareness Week!
March 10-16 has been designated as Holoprosencephaly Awareness Week! Over the course of the next several days, we would ask that you look for opportunities to share the HoPE you’ve found in Holoprosencephaly. Use your favorite social media accounts to reach others, and encourage those others to share the HoPE with their social media contacts. …
Fishing for HoPE 2013
Families for HoPE President Ed Tierney (Maeve’s dad) reports on the fishing tournament he hosted as a fundraiser benefiting Families for HoPE. Thank you so very much to you and your hard-working team of volunteers. Great job, Ed!
Celebrate HPE Awareness Week
LINKS: Miche Scentsy Thirty-One Blessings Unlimited Pampered Chef Premiere Designs