Having HoPE will give you courage
A mother and her son’s journey with Treacher Collins Syndrome and HPE
Tag: holoprosencephaly
Pearl Joy Brown
Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.
There is always HoPE
By Amy L. Springer, Guest Author I learned that I was pregnant February 24, 1994. I had a sonogram like normal and all was good. I later started to have problems with bleeding, so we did another sonogram, which showed the baby to have a “lemon-shaped head” and I had placenta previa so a follow …
Hercules’ Journey
Embrace the Journey with Hercules
Embrace the Journey with Carol-Lynn
An HPE mom shares how she has embraced the journey with HPE
New NIH Study on Environmental Determinants of Holoprosencephaly
New NIH study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this new environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation …
Registration is open for 2016 Family Conference on HPE
We want you to join us as A Family of HoPE at the 2016 Family Conference on Holoprosencephaly in Dallas, Texas on July 12-15 presented by Families for HoPE, Inc. and Carter Centers for Brain Research in Holoprosencephaly and Related Malformations. This conference is for families and persons who are affected by HPE, their extended …
#GivingTuesday 2015
#GivingTuesday is a movement to create a national day of giving on the Tuesday following Thanksgiving, Black Friday and Cyber Monday. On #GivingTuesday, please join Families for HoPE in helping to share the HoPE in Holoprosencephaly. We would love for you to join us with your time, talents, and personality to share the HoPE in …
Spread the word
For a limited time only there is toddler sizes, onsies and hoodies!! Order toddler shirts here