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Tag: holoprosencephaly

Harley Renee Tucker

FLASHBACK FRIDAY – July 2, 2006 Making the most of every day: Family copies with newborn’s terminal diagnosis Odessa American, Odessa, Texas Article published July 2, 2006 By Elizabeth York   Birth is a time of celebration, new life and wonder.  But one Odessa family is facing the terrible combination of having a newborn diagnosed with …

Rachel Steele

FLASHBACK FRIDAY – From June 2008 The Steele family of Richmond, Indiana, knows better than most just how full of God’s love and promise the Easter season can be.  Their reminder didn’t appear in an Easter basket, though.  It came in the form of twins!  Rachel Steele, this month’s Child of HoPE, and her twin …

Tara Lynn Morris

FLASHBACK FRIDAY – From November 2007 One day at a time. Those five little words have served Kim and Gloria Morris very well in their role as parents. Already the parents of 10 year-old Josh, Kim and Gloria added a baby girl to their family with the birth of Tara Lynn Morris on December 30, …

Michael Bangit, III

FLASHBACK FRIDAY – from June 2007 Michael Bangit III was born December 21, 2000 and has been diagnosed with semi-lobar holoprosencephaly. Michael’s father was killed in a logging accident when Michael was only six months old. Today, he lives with his mother, Candace Mobley, and his grandparents in North Carolina. Michael is described by his …

Blake Hunter Armes

Flashback Friday- From August 2007 As a veteran of Desert Storm and serving in Saudi Arabia as a nurse, Marki Armes of Scottsboro, Alabama, knows about challenges. On January 30, 1992, Marki and her husband, Tim, became parents to their first-born child, Blake Hunter Armes. It was quite a surprise to discover that Hunter was …

When My World Stopped Turning

By Michelle Alexander I can pick a time in my life when I felt as though the world had stopped turning. When time seemed to slow down to the point of hearing my own heart beat, loud and clear as if it were a base drum methodically beating inside of my ear. Then the feeling …

Underdog = Super Hero

In our HPE world, we know a thing or two about underdogs. From the moment we first heard the word “holoprosencephaly”, we received a front-row seat in the drama of underdogs.  Who hasn’t heard the phrase “incompatible with life”, yet looks around our HPE community world and sees the smiling faces of 20 and 30-year …