888-533-4443 Info@FamiliesforHoPE.org 1219 N. Wittfield Street, Indianapolis, IN 46229

Tag: HPE

Thank you, thank you, thank you!

Thank you to Barb Brown for your $15 donation to Families for HoPE on #GivingTuesday! Thank you to Jane Merdic for your $15 donation on #GivingTuesday to Families for HoPE. So pleased and grateful to Mary Gamache for your $100 donation to Families for HoPE on this #GivingTuesday! Thank you so much to Betsy Jochner …

Meet Mary and Robert

(Submitted by Pat Wright) HPE is not a rare disorder in our immediate family, 50% of the children have HPE, and it has not prematurely taken the lives of the affected children, as one is 32-years old and the other is 23-years old. It has however taken us down a road of understanding and certainly …

Songs for your journey of HoPE

Music often helps us get through different phases in our lives. We want to know what kind of music HPE families listen to, as they experience different moods. We have created some playlists on the Families for HoPE Pinterest board for different moods/themes! Do you have favorite songs to share?  We are seeking songs for encouragement; songs about motherhood; songs …

Save the Date for the 2014 Family Conference on HPE

Well, the wait is over! Grab your family calendar and save the dates! We want to invite you and your family to Dallas, Texas on October 2-4, 2014 for our 2014 Conference: “HoPE in the Heart of Texas”. The conference is a collaboration between Families for HoPE and the Carter Centers for Brain Research in …

My Journey

by Renee Hansen, Dakota’s mom Dakota Jade was born September 29, 1994. We did not know of her HPE when she was born. Days after she was born, we were told she had Semi Lobar Holoprosencephaly and if she did live, she would NOT have a life worth living. The doctors were WRONG. I made …

Harley Renee Tucker

FLASHBACK FRIDAY – July 2, 2006 Making the most of every day: Family copies with newborn’s terminal diagnosis Odessa American, Odessa, Texas Article published July 2, 2006 By Elizabeth York   Birth is a time of celebration, new life and wonder.  But one Odessa family is facing the terrible combination of having a newborn diagnosed with …