I’m thankful for. . .
HPE families, please comment below and tell us what you’re most thankful for this year!
Tag: HPE
June 14 – Racing for HoPE 2014
Meet Mary and Robert
(Submitted by Pat Wright) HPE is not a rare disorder in our immediate family, 50% of the children have HPE, and it has not prematurely taken the lives of the affected children, as one is 32-years old and the other is 23-years old. It has however taken us down a road of understanding and certainly …
Save the Date for the 2014 Family Conference on HPE
Well, the wait is over! Grab your family calendar and save the dates! We want to invite you and your family to Dallas, Texas on October 2-4, 2014 for our 2014 Conference: “HoPE in the Heart of Texas”. The conference is a collaboration between Families for HoPE and the Carter Centers for Brain Research in …
My Journey
by Renee Hansen, Dakota’s mom Dakota Jade was born September 29, 1994. We did not know of her HPE when she was born. Days after she was born, we were told she had Semi Lobar Holoprosencephaly and if she did live, she would NOT have a life worth living. The doctors were WRONG. I made …
Welcome little one
Baby Lael Faith Shoemaker is one of the newest additions to our HPE family. Click here to learn more about Lael Faith and her family.
HoPE is on YouTube
This playlist features children with HPE. Sit back, relax, and prepare to smile as you see these beautiful miracles–Eva, Madelyn, Sammy, Marissa, Maeve, Cameron. Do you have a video you’d like to share with us, please comment below and include your link.
Harley Renee Tucker
FLASHBACK FRIDAY – July 2, 2006 Making the most of every day: Family copies with newborn’s terminal diagnosis Odessa American, Odessa, Texas Article published July 2, 2006 By Elizabeth York Birth is a time of celebration, new life and wonder. But one Odessa family is facing the terrible combination of having a newborn diagnosed with …
Rachel Steele
FLASHBACK FRIDAY – From June 2008 The Steele family of Richmond, Indiana, knows better than most just how full of God’s love and promise the Easter season can be. Their reminder didn’t appear in an Easter basket, though. It came in the form of twins! Rachel Steele, this month’s Child of HoPE, and her twin …
Tara Lynn Morris
FLASHBACK FRIDAY – From November 2007 One day at a time. Those five little words have served Kim and Gloria Morris very well in their role as parents. Already the parents of 10 year-old Josh, Kim and Gloria added a baby girl to their family with the birth of Tara Lynn Morris on December 30, …