Tag: holoprosencephaly
FLASHBACK FRIDAY – July 2, 2006 Making the most of every day: Family copies with newborn’s terminal diagnosis Odessa American, Odessa, Texas Article published July 2, 2006 By Elizabeth York Birth is a time of celebration, new life and wonder. But one Odessa family is facing the terrible combination of having a newborn diagnosed with …
FLASHBACK FRIDAY – From June 2008 The Steele family of Richmond, Indiana, knows better than most just how full of God’s love and promise the Easter season can be. Their reminder didn’t appear in an Easter basket, though. It came in the form of twins! Rachel Steele, this month’s Child of HoPE, and her twin …
LINKS: Miche Scentsy Thirty-One Blessings Unlimited Pampered Chef Premiere Designs
FLASHBACK FRIDAY – From November 2007 One day at a time. Those five little words have served Kim and Gloria Morris very well in their role as parents. Already the parents of 10 year-old Josh, Kim and Gloria added a baby girl to their family with the birth of Tara Lynn Morris on December 30, …
FLASHBACK FRIDAY – from June 2007 Michael Bangit III was born December 21, 2000 and has been diagnosed with semi-lobar holoprosencephaly. Michael’s father was killed in a logging accident when Michael was only six months old. Today, he lives with his mother, Candace Mobley, and his grandparents in North Carolina. Michael is described by his …
Flashback Friday- From August 2007 As a veteran of Desert Storm and serving in Saudi Arabia as a nurse, Marki Armes of Scottsboro, Alabama, knows about challenges. On January 30, 1992, Marki and her husband, Tim, became parents to their first-born child, Blake Hunter Armes. It was quite a surprise to discover that Hunter was …
By Michelle Alexander I can pick a time in my life when I felt as though the world had stopped turning. When time seemed to slow down to the point of hearing my own heart beat, loud and clear as if it were a base drum methodically beating inside of my ear. Then the feeling …
In our HPE world, we know a thing or two about underdogs. From the moment we first heard the word “holoprosencephaly”, we received a front-row seat in the drama of underdogs. Who hasn’t heard the phrase “incompatible with life”, yet looks around our HPE community world and sees the smiling faces of 20 and 30-year …
Category: Inspiration, Racing for HoPE Tags: ballot, CRA, driver, holoprosencephaly, josh, most popular, racing, speed51, sportsman, super hero, timmerman, underdog
One of our new little ones with HPE, Pearl Joy Brown, has been busy helping raise awareness of HPE. Her story was published in the Washington Times newspaper earlier this week. Please take some time to read through the blog about her or follow her dad on Twitter. There is even a special virtual event …
Category: Birthdays, Inspiration, Milestones Tags: candles, cupcakes, eric brown, holoprosencephaly, HoPE, HPE, letters to pearl, pearl joy brown, ruth brown, washington times
It seems we have a sports theme going these days! First, congratulations to Laura Phillips for correctly naming the person in the “got HoPE?” contest. Laura is the mom to little Kaziah who has semi-lobar HPE. Laura will be receiving some logo items from Families for HoPE for her winning answer! The person in the photo …
Tag: holoprosencephaly
Harley Renee Tucker
Posted: March 1, 2013 by Leslie, Sammy's mom
FLASHBACK FRIDAY – July 2, 2006 Making the most of every day: Family copies with newborn’s terminal diagnosis Odessa American, Odessa, Texas Article published July 2, 2006 By Elizabeth York Birth is a time of celebration, new life and wonder. But one Odessa family is facing the terrible combination of having a newborn diagnosed with …
Category: Inspiration Tags: harley, holoprosencephaly, HoPE, HPE, odessa, tucker
Rachel Steele
Posted: February 23, 2013 by Leslie, Sammy's mom
FLASHBACK FRIDAY – From June 2008 The Steele family of Richmond, Indiana, knows better than most just how full of God’s love and promise the Easter season can be. Their reminder didn’t appear in an Easter basket, though. It came in the form of twins! Rachel Steele, this month’s Child of HoPE, and her twin …
Category: Child of HoPE Tags: holoprosencephaly, HoPE, HPE, rachel steele, richmond, Riley, twins
Celebrate HPE Awareness Week
Posted: February 20, 2013 by Leslie, Sammy's mom
LINKS: Miche Scentsy Thirty-One Blessings Unlimited Pampered Chef Premiere Designs
Category: Fundraising, Holidays, Holoprosencephaly Awareness Week Tags: awareness, fundraiser, get involved, help, holoprosencephaly, HoPE
Tara Lynn Morris
Posted: February 15, 2013 by Leslie, Sammy's mom
FLASHBACK FRIDAY – From November 2007 One day at a time. Those five little words have served Kim and Gloria Morris very well in their role as parents. Already the parents of 10 year-old Josh, Kim and Gloria added a baby girl to their family with the birth of Tara Lynn Morris on December 30, …
Category: Child of HoPE, Inspiration Tags: gloria, holoprosencephaly, HPE, kim, morris, tara, wisconsin
Michael Bangit, III
Posted: February 8, 2013 by Leslie, Sammy's mom
FLASHBACK FRIDAY – from June 2007 Michael Bangit III was born December 21, 2000 and has been diagnosed with semi-lobar holoprosencephaly. Michael’s father was killed in a logging accident when Michael was only six months old. Today, he lives with his mother, Candace Mobley, and his grandparents in North Carolina. Michael is described by his …
Category: Child of HoPE, Inspiration Tags: bangit, holoprosencephaly, HPE, michael
Blake Hunter Armes
Posted: February 1, 2013 by Leslie, Sammy's mom
Flashback Friday- From August 2007 As a veteran of Desert Storm and serving in Saudi Arabia as a nurse, Marki Armes of Scottsboro, Alabama, knows about challenges. On January 30, 1992, Marki and her husband, Tim, became parents to their first-born child, Blake Hunter Armes. It was quite a surprise to discover that Hunter was …
Category: Child of HoPE, Grief Tags: Alabama, grief, holoprosencephaly, HPE, hunter, loss, marki, tim
When My World Stopped Turning
Posted: October 30, 2012 by Leslie, Sammy's mom
By Michelle Alexander I can pick a time in my life when I felt as though the world had stopped turning. When time seemed to slow down to the point of hearing my own heart beat, loud and clear as if it were a base drum methodically beating inside of my ear. Then the feeling …
Category: Guest Authors, Inspiration, Perspectives Tags: diagnosis, holoprosencephaly, HoPE, HPE, hydrocephalus, ultrasound
Underdog = Super Hero
Posted: September 28, 2012 by Leslie, Sammy's mom
In our HPE world, we know a thing or two about underdogs. From the moment we first heard the word “holoprosencephaly”, we received a front-row seat in the drama of underdogs. Who hasn’t heard the phrase “incompatible with life”, yet looks around our HPE community world and sees the smiling faces of 20 and 30-year …
Category: Inspiration, Racing for HoPE Tags: ballot, CRA, driver, holoprosencephaly, josh, most popular, racing, speed51, sportsman, super hero, timmerman, underdog
1 – 2 – 3 – 4 – 5 – 6 . . .
Posted: September 8, 2012 by Leslie, Sammy's mom
One of our new little ones with HPE, Pearl Joy Brown, has been busy helping raise awareness of HPE. Her story was published in the Washington Times newspaper earlier this week. Please take some time to read through the blog about her or follow her dad on Twitter. There is even a special virtual event …
Category: Birthdays, Inspiration, Milestones Tags: candles, cupcakes, eric brown, holoprosencephaly, HoPE, HPE, letters to pearl, pearl joy brown, ruth brown, washington times
Sports Center
Posted: March 28, 2012 by Leslie, Sammy's mom
It seems we have a sports theme going these days! First, congratulations to Laura Phillips for correctly naming the person in the “got HoPE?” contest. Laura is the mom to little Kaziah who has semi-lobar HPE. Laura will be receiving some logo items from Families for HoPE for her winning answer! The person in the photo …
Category: Racing for HoPE Tags: holoprosencephaly, HoPE, Hope Zeller, Josh Timmerman, Kyle Gimple, Luke Zeller, racing, radio, Speed Talk