Families for HoPE is excited to welcome all newly expectant moms and dads with an HPE diagnosis to our 2024 Wednesday Night Check-In on Zoom!
NIH Study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation that often …
One mom’s story of having more children after HPE
New NIH study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this new environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation …
Tag: pregnancy
HoPE in the Waiting for Expectant Parents
Posted: January 17, 2024 by Leslie, Sammy's mom
Families for HoPE is excited to welcome all newly expectant moms and dads with an HPE diagnosis to our 2024 Wednesday Night Check-In on Zoom!
Category: Prenatal Diagnosis Tags: dad, diagnosis, holoprosencephaly, mom, pregnancy, prenatal, seeking hope, support
NIH Study on Environmental Determinants of Holoprosencephaly
Posted: November 27, 2018 by Leslie, Sammy's mom
NIH Study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation that often …
Category: Research Tags: determinants, environmental, NIH, pregnancy, study, survey
More children after HPE
Posted: October 29, 2018 by Leslie, Sammy's mom
One mom’s story of having more children after HPE
Category: Embrace the Journey, Guest Authors, Perspectives Tags: brother, eric ryan, HPE, preemie, pregnancy, sibings, sister, slider
New NIH Study on Environmental Determinants of Holoprosencephaly
Posted: September 30, 2016 by Leslie, Sammy's mom
New NIH study on Environmental Determinants of Holoprosencephaly We understand only a fraction of the causes of holoprosencephaly and what leads to the wide spectrum of clinical features seen in patients with holoprosencephaly. In this new environmental study, we are trying to better understand the different factors that can contribute to holoprosencephaly and its presentation …
Category: Research Tags: environmental, holoprosencephaly, HPE, NIH, pregnancy, study, survey