Lynton Dawson is a triathlete from the UK. Hannah Smith is a child with HPE from the US. They have never met; however, they have a very special bond.
Living with a special kid
Hello, I’m Virginia, I have a little girl, Violeta, (3 years) with HPE semilobar and we live in Buenos Aires. She’s a cutie and she doesn’t have health issues (touch wood). Of course she has delays. I write a blog about living with a special kid (it’s in spanish: https://tenerunhijocondiscapacidad.wordpress.com/
Deepest Sympathy
Chance Urschel obituary “On behalf of all HPE families past and present, Families for HoPE extends its deepest condolences, love and admiration to the family of Chance Urschel. Chance is the child who brought HoPE to the hopeless, and his inspiration touched all of our lives.”
Toughest Marathon
I Run 4 Michael organization Hi. My name is Sarah Smith. Many of you know me as Hannalise Rose’s Momma. Hanna has Semi-lobar Holoprosencephaly, Microcephaly, Cerebral Palsy, and Diabetes Insipidus. We found out at 27 weeks gestation about her condition. It’s likely been a couple of years now since some of my fellow HoPE …
Reflections
One more year loaded with sweet recollections and cheerful times have passed. Wonderful people have made our year exceptionally uncommon, and I wish this continues forever. With each sweet person around, each minute is a unique event for us. I wish everyone to have a year as incredible as you all are.Life is a progression …
HoPE 4 Kate
Hope is a word I never thought too much about, just a word without much meaning. But since 2013 it is a word with a whole lot of meaning, but then written as HoPE. On July 7th 2013 our daughter Kate was born. My pregnancy was uneventful except for a 33 week sonogram …
Can you define normal for me?
Can You Define Normal for Me? There’s More to His Life Than a Wheelchair September 2015 BY A.J. ZENDER On my first day home from college this past spring, bracing myself to live again with my parents as a 22-year-old college graduate, I walked in and saw my dad, just sitting down after work. We …
Our mascot needs a name . . .
Before Families for HoPE was formed in 2006, there’s a character/animal that has served as our unofficial mascot in the HPE community, and that mascot is the frog. It all started following the passing of Harrison Stauft, forever known as the little boy who loved frogs–specifically, five green and speckled frogs. This was a song …
Spread the word
To order, click here: http://www.booster.com/together-in-hope Buy a shirt to spread the word