What is it really…this HOPE? And why is it so important? Hope is something we can feel, but hope is also an intentional choice. Definition; hope /hōp/ a feeling of expectation and desire for a certain thing to happen.”he looked through her belongings in the hope of coming across some information” synonyms: aspiration, desire, wish, expectation, ambition, …
Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.
Hello, I’m Virginia, I have a little girl, Violeta, (3 years) with HPE semilobar and we live in Buenos Aires. She’s a cutie and she doesn’t have health issues (touch wood). Of course she has delays. I write a blog about living with a special kid (it’s in spanish: https://tenerunhijocondiscapacidad.wordpress.com/
Posted: March 28, 2019 by Leslie, Sammy's mom
A Wish With Wings
By: Kelli Aardal Goin The news that no parent wants to hear,
Posted: March 27, 2019 by Leslie, Sammy's mom
If there were a cure
If there were a cure.
Posted: March 27, 2019 by Leslie, Sammy's mom
Where we are
By Nikki Tuma Here is a little story about Kreighton that got us to where we are today.
Posted: March 26, 2019 by Leslie, Sammy's mom
What HoPE means to us
What is it really…this HOPE? And why is it so important? Hope is something we can feel, but hope is also an intentional choice. Definition; hope /hōp/ a feeling of expectation and desire for a certain thing to happen.”he looked through her belongings in the hope of coming across some information” synonyms: aspiration, desire, wish, expectation, ambition, …
Posted: October 2, 2018 by Leslie, Sammy's mom
Overcoming Obstacles One Climb at a Time
Meet Keith!
Posted: March 31, 2018 by Leslie, Sammy's mom
2018 Conference Update
Author, Christopher de Vinck to deliver keynote address
Posted: January 23, 2018 by Leslie, Sammy's mom
Pearl Joy Brown
Last week, Pearl Joy Brown’s dad, Eric Brown, was asked to speak at a conference in Washington, DC. Thank you, Eric, for sharing your humble spirit, your sincere and heartfelt words, and your beautiful photos.
Posted: October 24, 2016 by Leslie, Sammy's mom
I run 4 Michael/Hannah
Lynton Dawson is a triathlete from the UK. Hannah Smith is a child with HPE from the US. They have never met; however, they have a very special bond.
Posted: June 28, 2016 by Leslie, Sammy's mom
Living with a special kid
Hello, I’m Virginia, I have a little girl, Violeta, (3 years) with HPE semilobar and we live in Buenos Aires. She’s a cutie and she doesn’t have health issues (touch wood). Of course she has delays. I write a blog about living with a special kid (it’s in spanish: https://tenerunhijocondiscapacidad.wordpress.com/
Posted: March 28, 2016 by Leslie, Sammy's mom
HPE and other wacky goodness
HPE Awareness Week 2016