By: Eric Brown Quality of life… What a phrase! Seems like we hear it a lot in the HoPE community. Sometimes it’s from doctors during that 20-week ultrasound, as they unpack what the future may likely hold. Or maybe it’s shortly after delivery, when facts are finally being gathered and a diagnosis is given a …
What does HoPE look like?
What does HoPE look like? By: Kelli Aardal Goin Have you ever sat and thought about how important HoPE is in our lives? While it is possible to live without a lot of things, it is impossible to live without HoPE. It wasn’t until Abbey was diagnosed with Holoprosencephaly that I truly understood that concept …
HoPE and the One Percenters
Please enjoy this YouTube video created by Rob Myers, Gabby’s dad, on #GivingTuesday. Thank you so much to Rob, Heidi, and Gabby for your commitment, support, and inspiration.
Sharing the HoPE at Thanksgiving
As we gear up for #GivingTuesday, here are a few ideas to try on Thanksgiving Day for involving your extended family in sharing the HoPE in HPE and supporting the projects of Families for HoPE: After you count your blessings and wrestle Uncle Bob for the last piece of Grandma’s prize-winning pumpkin pie, gather everyone …
I’m thankful for. . .
HPE families, please comment below and tell us what you’re most thankful for this year!
The J.P. Story
This is a great blog written by a dad about one of our HPE families in Florida. http://navigatinglifesdetours.com/2014/08/30/the-j-p-story-uncertainty-before-birth/
So very thankful . . .
We are thankful for each of the infants, children, and adults with HPE who have touched our hearts in countless ways–those born and unborn, living or deceased. We are thankful for our HPE parents. We all remember the moment that the word “holoprosencephaly” became a part of our vocabulary, and we are grateful to have …