In our HPE world, we know a thing or two about underdogs. From the moment we first heard the word “holoprosencephaly”, we received a front-row seat in the drama of underdogs. Who hasn’t heard the phrase “incompatible with life”, yet looks around our HPE community world and sees the smiling faces of 20 and 30-year …
1 – 2 – 3 – 4 – 5 – 6 . . .
One of our new little ones with HPE, Pearl Joy Brown, has been busy helping raise awareness of HPE. Her story was published in the Washington Times newspaper earlier this week. Please take some time to read through the blog about her or follow her dad on Twitter. There is even a special virtual event …
In memory of Paige . . .
This photo montage was created by Bridget Eckert, in memory of her baby sister Paige. Thank you Bridget for Sharing the HoPE in HoloProsEncephaly!
5K Run/Walk for HOPE in Southern California on October 15
Inspired by her 11 month-old daughter, Reagan, Roselle Martinez has been a very busy woman. Roselle approached Families for HoPE a few months ago with a desire to organize a run/walk to raise awareness of HPE. Since that time, she has been tireless in her efforts to recruit sponsors, runners, and support for the 5K …
Changing Lives with HoPE
Maybe you haven’t heard of Nolan…but that’s all about to change! When Janelle Emory learned that her unborn nephew, Nolan, would be born with Holoprosencephaly, she knew that she wanted to do something special in his honor. Inspired by Nolan and his journey of HoPE, Janelle has started a fundraising campaign called “Changing Lives With …
Racing for HoPE
If the rain will hold off, awareness of HPE will be spread throughout the northeastern part of Indiana today. Today is opening day of the 2011 racing season at Baer Field Speedway in Fort Wayne, Indiana, and Late Model driver Josh Timmerman will be driving his #09 Chevy Impala which bears the Families for HoPE …
Child of HoPE!
We’ve been promising to bring you a series called,’Child of HoPE,’ designed to put the spotlight on children with HPE, who are filled with HoPE! Back in January, I announced a young lady by the name of Julianna, would be our very first ‘Child of HoPE!’ Julianna is a beautiful girl with a big heart. …