FLASHBACK FRIDAY – from June 2007 Michael Bangit III was born December 21, 2000 and has been diagnosed with semi-lobar holoprosencephaly. Michael’s father was killed in a logging accident when Michael was only six months old. Today, he lives with his mother, Candace Mobley, and his grandparents in North Carolina. Michael is described by his …
13 Days of HoPE . . .
Some of our most-viewed blog entries came in 2010 when we shared “The 13 Days of Arthur“, written by Melissa Mouzin-Bennett, Arthur’s mom. While Arthur lived only 13 days, his impact continues to be felt in the lives of his family and the hearts of those who will read Melissa’s words. Please join with us …
When My World Stopped Turning
By Michelle Alexander I can pick a time in my life when I felt as though the world had stopped turning. When time seemed to slow down to the point of hearing my own heart beat, loud and clear as if it were a base drum methodically beating inside of my ear. Then the feeling …
Underdog = Super Hero
In our HPE world, we know a thing or two about underdogs. From the moment we first heard the word “holoprosencephaly”, we received a front-row seat in the drama of underdogs. Who hasn’t heard the phrase “incompatible with life”, yet looks around our HPE community world and sees the smiling faces of 20 and 30-year …
1 – 2 – 3 – 4 – 5 – 6 . . .
One of our new little ones with HPE, Pearl Joy Brown, has been busy helping raise awareness of HPE. Her story was published in the Washington Times newspaper earlier this week. Please take some time to read through the blog about her or follow her dad on Twitter. There is even a special virtual event …
In memory of Paige . . .
This photo montage was created by Bridget Eckert, in memory of her baby sister Paige. Thank you Bridget for Sharing the HoPE in HoloProsEncephaly!
5K Run/Walk for HOPE in Southern California on October 15
Inspired by her 11 month-old daughter, Reagan, Roselle Martinez has been a very busy woman. Roselle approached Families for HoPE a few months ago with a desire to organize a run/walk to raise awareness of HPE. Since that time, she has been tireless in her efforts to recruit sponsors, runners, and support for the 5K …