2026 HPE Awareness Week is March 22nd – March 28th

At Families for HoPE, we know that the journey with Holoprosencephaly can often feel like navigating a vast and unpredictable sea. This year, our theme—Connected by HoPE, United by Love—is a reminder that no family has to sail alone. The Anchor symbolizes the stability we find in one another; it is the strength that keeps us from drifting during the storms of medical uncertainty.

This year our celebration is designed to strengthen these vital links through shared stories, collective wisdom, and visible support. We aren’t just a resource; we are a harbor. Together, we are anchored in a love that never let’s go.

Awareness Week offers a powerful lineup of daily challenges and celebrations to keep us connected from March 22nd to March 28th:

• The Thread Challenge (Mar 22): Tag another family who has helped you through tough times.

• The Unwritten Manual (Mar 23): Share the wisdom you’ve gained that isn’t found in any pamphlet.

• Connection Clips (Mar 24): Share a video or comment finishing the sentence: “I feel most connected when…”

• Blue/Anchor Day (Mar 25): Wear blue or anchor-themed clothing to show your support.

• Small Victories Day (Mar 26): Celebrate the “inch-stones” and milestones reached this week.

• Support Circle Shout-outs (Mar 27): Post a photo of the person who serves as your personal anchor—those who strengthen your circle.

• Woven Memories (Mar 28): A day for families who have lost a child to share the beautiful things their child “wove” into their lives.

Show your colors! We’ve created special “Connected by HoPE” frames on Twibbonize to unite our profiles across social media.

2.Upload your photo: Click “Choose a Photo” and select a picture of your child or family.

3.Adjust and Download: Position your photo within the anchor frame, click “Next,” and download the final image.

4. Set as Profile Pic: Upload the saved photo as your new Facebook or Instagram profile picture!

Our official 2026 Awareness shirts are now live on Bonfire! Featuring our custom HoPE Anchor designs, these shirts are a physical reminder that we are all part of the same anchor chain. Every purchase helps fund the resources and connections that keep our harbor strong. Bonfire Link: https://www.bonfire.com/store/families-for-hope/?utm_source=copy_link&utm_medium=store_page_published_share&utm_campaign=families-for-hope&utm_content=default