In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE. Held biennially, the conference is a collaborative endeavor among Families for HoPE, the Carter Centers for Research in Holoprosencephaly, Texas Scottish Rite Hospital for Children and National Institutes …
How Families for HoPE has saved my family
Written by James Pruitt, HPE Dad
Conference Workshops
Do It Yourself Sensory Ideas – Come learn about our sensory system and its role in development and daily activities. Come find your sensory preferences. Families will work together to create, try and share sensory activities that can be used in the home. Goals, goals, goals – Bring your child’s IEP (goal plan for school). …
DEADLINE FOR CONFERENCE REGISTRATION JUNE 1st
Since Families for HoPE began as an organization in 2006, we have held five family conferences on HPE, and each one has seen increased attendance over the prior conference. The 2016 conference planned for July is no exception, and we have exceeded expectations as far as registrations and attendees. In fact, we have maxed out …
2016 Conference Registration Frequently Asked Questions
2016 Conference FAQ Q: If I pay online for the conference fee, do I still need to complete the separate registration form and mail or email to Roxanne Steele/Families for HoPE? A: Yes, each family needs to complete a registration form. If you pay your registration fee online, you will receive a confirmation reminding you …
Registration is open for 2016 Family Conference on HPE
We want you to join us as A Family of HoPE at the 2016 Family Conference on Holoprosencephaly in Dallas, Texas on July 12-15 presented by Families for HoPE, Inc. and Carter Centers for Brain Research in Holoprosencephaly and Related Malformations. This conference is for families and persons who are affected by HPE, their extended …
2016 Conference Announcement
Families for HoPE announces exciting news
2016 Family Conference on Holoprosencephaly
Save the dates of July 12-15, 2016 for the next Family Conference on Holoprosencephaly sponsored by Families for HoPE, Inc. in collaboration with the Carter Centers for Brain Research in Holoprosencephaly and Related Malformations! Families for HoPE is thrilled to make a return visit to the great state of Texas in 2016. Just as in …
2014 Family Conference on HPE
The 2014 Family Conference on HPE was held in Dallas, Texas on October 2-4. Held at the Texas Scottish Rite Hospital for Children Conference Center, over 60 HPE families gathered for the conference sponsored by Families for HoPE in collaboration with the Carter Center for Research in Holoprosencephaly and Related Malformations.
September 28 – Racing for HoPE 2014
Click HERE to read more about Racing for HoPE.