Miss Charlie Dawn Rinard
For grieving dads…
It must be very difficult to be a man in grief since “men don’t cry” and “men are strong” no tears can bring relief. It must be very difficult to stand up to the test and field the calls and visitors so she can gets some rest They always ask if she’s alright and what …
For the mom’s . . .
Please take a moment to read this blog entry from SpecialNeedsMom.com; it describes so very many of us perfectly.
My Journey
by Renee Hansen, Dakota’s mom Dakota Jade was born September 29, 1994. We did not know of her HPE when she was born. Days after she was born, we were told she had Semi Lobar Holoprosencephaly and if she did live, she would NOT have a life worth living. The doctors were WRONG. I made …
The R-Word
Today, March 6 has been designated as the awareness day for the annual “Spread the Word to End the Word” campaign. One of our HPE dads offered his thoughts in a Tweet. Cultural BlindSpot: You're not actually thinking of our kids when you say it. It's all we think about when we hear it pic.twitter.com/TjwBrrINwZ …
Jessie’s sister finds HoPE again
Please check out this new blog from Jenny, one of our HPE siblings. This blog is where Jenny writes letters to her brother, Andy, who passed away following an accident in 2008. Jenny and Andy had a sister named Jessie who died in 1988 with HPE. In this particular entry, Jenny tells Andy about meeting …
13 Days of HoPE . . .
Some of our most-viewed blog entries came in 2010 when we shared “The 13 Days of Arthur“, written by Melissa Mouzin-Bennett, Arthur’s mom. While Arthur lived only 13 days, his impact continues to be felt in the lives of his family and the hearts of those who will read Melissa’s words. Please join with us …
When My World Stopped Turning
By Michelle Alexander I can pick a time in my life when I felt as though the world had stopped turning. When time seemed to slow down to the point of hearing my own heart beat, loud and clear as if it were a base drum methodically beating inside of my ear. Then the feeling …