Can You Define Normal for Me? There’s More to His Life Than a Wheelchair September 2015 BY A.J. ZENDER On my first day home from college this past spring, bracing myself to live again with my parents as a 22-year-old college graduate, I walked in and saw my dad, just sitting down after work. We …
Trust in the Lord with all your heart, and do not lean on your own understanding. In all your ways acknowledge him, and he will make straight your paths. Proverbs 3:5-6 And our journey begins…..One of an unknown path, One of which WE chose not to ignore or terminate on our own, One of which …
By: Eric Brown Quality of life… What a phrase! Seems like we hear it a lot in the HoPE community. Sometimes it’s from doctors during that 20-week ultrasound, as they unpack what the future may likely hold. Or maybe it’s shortly after delivery, when facts are finally being gathered and a diagnosis is given a …
What does HoPE look like? By: Kelli Aardal Goin Have you ever sat and thought about how important HoPE is in our lives? While it is possible to live without a lot of things, it is impossible to live without HoPE. It wasn’t until Abbey was diagnosed with Holoprosencephaly that I truly understood that concept …
(Written by Michelle Alexander) 13 years ago, I laid bleeding to death. I had just seen my only baby girl for the first time without the fuzziness of an ultrasound. She was beautiful. For 7 hours, I laid in recovery while my body threaten to give up. Thinking of the only real picture I had …
(Submitted by Pat Wright) HPE is not a rare disorder in our immediate family, 50% of the children have HPE, and it has not prematurely taken the lives of the affected children, as one is 32-years old and the other is 23-years old. It has however taken us down a road of understanding and certainly …
Families for HoPE President Ed Tierney (Maeve’s dad) reports on the fishing tournament he hosted as a fundraiser benefiting Families for HoPE. Thank you so very much to you and your hard-working team of volunteers. Great job, Ed!
Posted: September 30, 2015 by Leslie, Sammy's mom
Can you define normal for me?
Can You Define Normal for Me? There’s More to His Life Than a Wheelchair September 2015 BY A.J. ZENDER On my first day home from college this past spring, bracing myself to live again with my parents as a 22-year-old college graduate, I walked in and saw my dad, just sitting down after work. We …
Posted: September 19, 2015 by Leslie, Sammy's mom
Grieving the loss of Kaziah Gracie
Trust in the Lord with all your heart, and do not lean on your own understanding. In all your ways acknowledge him, and he will make straight your paths. Proverbs 3:5-6 And our journey begins…..One of an unknown path, One of which WE chose not to ignore or terminate on our own, One of which …
Posted: September 2, 2015 by Leslie, Sammy's mom
Quality of Life
By: Eric Brown Quality of life… What a phrase! Seems like we hear it a lot in the HoPE community. Sometimes it’s from doctors during that 20-week ultrasound, as they unpack what the future may likely hold. Or maybe it’s shortly after delivery, when facts are finally being gathered and a diagnosis is given a …
Posted: August 19, 2015 by Leslie, Sammy's mom
What does HoPE look like?
What does HoPE look like? By: Kelli Aardal Goin Have you ever sat and thought about how important HoPE is in our lives? While it is possible to live without a lot of things, it is impossible to live without HoPE. It wasn’t until Abbey was diagnosed with Holoprosencephaly that I truly understood that concept …
Posted: August 17, 2015 by Leslie, Sammy's mom
Hug Life
Posted: March 14, 2014 by Leslie, Sammy's mom
Meet Abigail
(Written by Michelle Alexander) 13 years ago, I laid bleeding to death. I had just seen my only baby girl for the first time without the fuzziness of an ultrasound. She was beautiful. For 7 hours, I laid in recovery while my body threaten to give up. Thinking of the only real picture I had …
Posted: March 14, 2014 by Leslie, Sammy's mom
Meet Mary and Robert
(Submitted by Pat Wright) HPE is not a rare disorder in our immediate family, 50% of the children have HPE, and it has not prematurely taken the lives of the affected children, as one is 32-years old and the other is 23-years old. It has however taken us down a road of understanding and certainly …
Posted: October 24, 2013 by Leslie, Sammy's mom
See instead . . .
Miss Charlie Dawn Rinard
Posted: October 19, 2013 by Leslie, Sammy's mom
Fishing for HoPE 2013
Families for HoPE President Ed Tierney (Maeve’s dad) reports on the fishing tournament he hosted as a fundraiser benefiting Families for HoPE. Thank you so very much to you and your hard-working team of volunteers. Great job, Ed!
Posted: May 12, 2013 by Leslie, Sammy's mom
For the mom’s . . .
Please take a moment to read this blog entry from SpecialNeedsMom.com; it describes so very many of us perfectly.