Oh, What a Night (or Day)
Songs can tell a story. On day 3 of Holoprosencephaly Awareness Week, we invite you to be a storyteller. Tell the story of one of the best days ever in the life of your child or family. Tell the story in writing, with photos or give video a try.
In addition to sharing your story with friends and family on your social media accounts, we would love to share your stories with a wider audience, so please send your stories to info@familiesforhope.org.
My son passed away from alobar holoprosencephaly 15 years ago and my favorite memory of Thomas was when he smiled! Breathtaking, Thank you for letting me share,Erika