Category: Uncategorized


Living with a special kid

Hello, I’m Virginia, I have a little girl, Violeta, (3 years) with HPE semilobar and we live in Buenos Aires. She’s a cutie and she doesn’t have health issues (touch wood). Of course she has delays. I write a blog about…

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Conference Workshops 

Do It Yourself Sensory Ideas – Come learn about our sensory system and its role in development and daily activities. Come find your sensory preferences. Families will work together to create, try and share sensory activities that can be used…

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Make Dad Smile

Remember Father’s Day and help give back to Families for Hope!  Click here to order thru Amazon Smiles for Fathers Day

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Indy

Families for HoPE driver Kyle Gimple recently moved to CJ Wilson Racing, and as a result, he traded the Mini Cooper for a Mazda MX-5. That move brought him a 5th place finish in his July 27 race at Indianapolis…

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In memory of Paige . . .

This photo montage was created by Bridget Eckert, in memory of her baby sister Paige. Thank you Bridget for Sharing the HoPE in HoloProsEncephaly!

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got HoPE? Contest

In 2010, we designed the “got HoPE?” shirts for a fundraising walk in Indianapolis. The picture below is from that walk. The person wearing our “got HoPE?” shirt in the photo below is a public figure. The first person to…

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Maybe…

I discovered this on the blog of an HPE mommy, Jill. I really liked it, and wanted to share it with our HoPE readers. If you would like to read other entries by Jill, Abbey’s mother, please click here. Maybe….

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5K Run/Walk for HoPE

The 5K Run/Walk for HoPE is drawing near!

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5K Run/Walk for HOPE in Southern California on October 15

Inspired by her 11 month-old daughter, Reagan, Roselle Martinez has been a very busy woman.  Roselle approached Families for HoPE a few months ago with a desire to organize a run/walk to raise awareness of HPE.  Since that time, she…

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Run, Coach, Run

To paraphrase a well-known quote, “A journey of 1 million steps begins with a single HoPE”. HPE grandfather Dennis Clifton (aka Coach) is on track to break a Guinness world record tomorrow with 1 million steps taken in 31 days…

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Racing for HoPE

If the rain will hold off, awareness of HPE will be spread throughout the northeastern part of Indiana today.  Today is opening day of the 2011 racing season at Baer Field Speedway in Fort Wayne, Indiana, and Late Model driver…

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Something to say…

There are times when I sit in front of a blank screen hoping for something profound or inspiring to write about, and nothing comes to me; therefore, I have nothing to say. Of course, I think it’s actually that I…

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Happy Halloween

Halloween can be a challenge for parents, and there are so many uncertainties that we face. What costume? Will it keep my child warm enough? How do we incorporate the wheelchair into the costume? How do we get to the…

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