Hello, I’m Virginia, I have a little girl, Violeta, (3 years) with HPE semilobar and we live in Buenos Aires. She’s a cutie and she doesn’t have health issues (touch wood). Of course she has delays. I write a blog about living with a special kid (it’s in spanish: https://tenerunhijocondiscapacidad.wordpress.com/
Conference Workshops
Do It Yourself Sensory Ideas – Come learn about our sensory system and its role in development and daily activities. Come find your sensory preferences. Families will work together to create, try and share sensory activities that can be used in the home. Goals, goals, goals – Bring your child’s IEP (goal plan for school). …
Make Dad Smile
Remember Father’s Day and help give back to Families for Hope! Click here to order thru Amazon Smiles for Fathers Day
Indy
Families for HoPE driver Kyle Gimple recently moved to CJ Wilson Racing, and as a result, he traded the Mini Cooper for a Mazda MX-5. That move brought him a 5th place finish in his July 27 race at Indianapolis Motor Speedway, the historical track best known as the home of the Indy 500. With …
In memory of Paige . . .
This photo montage was created by Bridget Eckert, in memory of her baby sister Paige. Thank you Bridget for Sharing the HoPE in HoloProsEncephaly!
got HoPE? Contest
In 2010, we designed the “got HoPE?” shirts for a fundraising walk in Indianapolis. The picture below is from that walk. The person wearing our “got HoPE?” shirt in the photo below is a public figure. The first person to comment on this blog entry and correctly name this person will be awarded a Families …
Maybe…
I discovered this on the blog of an HPE mommy, Jill. I really liked it, and wanted to share it with our HoPE readers. If you would like to read other entries by Jill, Abbey’s mother, please click here. Maybe. . . We were supposed to meet the wrong people before meeting the right one …
5K Run/Walk for HOPE in Southern California on October 15
Inspired by her 11 month-old daughter, Reagan, Roselle Martinez has been a very busy woman. Roselle approached Families for HoPE a few months ago with a desire to organize a run/walk to raise awareness of HPE. Since that time, she has been tireless in her efforts to recruit sponsors, runners, and support for the 5K …
Run, Coach, Run
To paraphrase a well-known quote, “A journey of 1 million steps begins with a single HoPE”. HPE grandfather Dennis Clifton (aka Coach) is on track to break a Guinness world record tomorrow with 1 million steps taken in 31 days all for the sake of HoPE! A resident of the Cincinnati, Ohio area, Coach is …
