Monday’s Agenda and Links

If you are using a mobile device (phone, tablet, etc.) to view the Conference on HPE, you will need to first download the Microsoft Teams app to that device.  Once you download it, go back to your link and attempt to rejoin.  Use the same email address that you used to register for the session.

If you are joining from a PC or laptop, you can simply join from a web browser (Microsoft Edge, Google Chrome or Mozilla Firefox).

MONDAY, AUGUST 12, 2024 – Morning Session  REGISTER FOR THIS SESSION HERE
10:00am – 10:30am EDT
Welcome and Opening Remarks
Presented by Steve Harley and Susan Millender

10:30am – 11:30am EDT
Holoprosencephaly and the Carter Centers for Brain Research:  Overview and history
Presented by Nancy Clegg, BSN, MSN, PhD, CCRP

11:30am – 12:30pm EDT
Medical Nutrition for Children with Developmental Disabilities:  How to quantify adequate growth when your child doesn’t fit the standard growth charts
Presented by Janice Scott, MS, RD, CSP, LD

MONDAY, AUGUST 12, 2024 – Afternoon Session   REGISTER FOR THIS SESSION HERE
12:45pm – 1:45pm EDT
HPE Diagnosis and Finding Answers:  What’s new in genetics?
Presented by Paul Kruszka, MD, MPH, FACMG, Chief Medical Officer, GeneDX

2:00pm – 3:00pm EDT
Family Caregiver Support Overview:  What it is and why it is so important to family wellness
Presented by Angela Shierk, PhD, OTR and Joe (JD) De La Torre, III, OTD