We at Families for HoPE are sincerely thankful for the donations received last week during “Send the Love,” the micro-giving campaign by Scott Swan and WTHR Channel 13 (NBC) in Indianapolis.
We were honored to be spotlighted as the designated charity for the campaign January 27th through 31st, during which 80 Central Indiana donors gave $5 to $515. The campaign raised $2,675 in support of our mission to empower, educate, support and advocate for all holoprosencephaly families.
“We are thankful to Scott Swan and WTHR Channel 13 and we thank each and every person who contributed to exceeding our campaign goal,” said Families for HoPE Board President Steve Harley. “The outpouring of community support for our mission is heartwarming and inspiring.”
Families for HoPE is the only parent-led organization for families touched by holoprosencephaly worldwide. We support families in Indiana, throughout the United States, and 75 other countries. Each year, Families for HoPE connects more than new 100 families to a compassionate, supportive community of their peers. Our online support community includes 3,200 members and followers on social media.
“The work we do would not be possible without the support of the communities we serve,” said Arika Gates, Board Treasurer. “Every donation counts and every donor’s support is greatly appreciated.”
Families for HoPE has supported children, caregivers and families touched by holoprosencephaly from birth to bereavement since 2006.
Posted: November 23, 2025 by lyndot71
2025 Families for HoPE Fall Family Survey
The FUTURE OF FAMILIES FOR HoPE
STARTS HERE, NOW, WITH YOU
Each and every family touched by holoprosencephaly is important to Families for HoPE. You fuel everything we do and play a key role in how we function. Please take a few minutes to complete the Fall 2025 Family Survey. Your answers to this survey will help chart the path forward for the families we connect and support.
By responding to this short survey no later today, you can share valuable information about what you want Families for HoPE to provide you and your family. Your answers will help us meet our goal of making Families for HoPE as viable and meaningful as possible!! Please take the survey today by clicking on the link below.
https://forms.office.com/r/4MdeWaDBdb
Posted: November 4, 2025 by lyndot71
Vote for Your Favorite Halloween Costume Contest Cutie!
Join the fun and give hope and support to a family when they need it most! Visit gogophotocontest.com/familiesforhope to cast your vote today. Whether you vote for a spooky ghost or a dazzling fairy princess your support will bring a family miles of smiles and joy. You will also receive a dazzling, hope-filled DIY Bead Kit to thank you for your generosity!!
Posted: November 3, 2025 by lyndot71
Get In On the Halloween Costume Contest Fun & Receive DIY Bead Kits
It’s autumn and the creativity of our families’ is as bright and varied as the falling leaves. Take a look at our Halloween Costume Contest entries and see for yourself. Join the fun and vote at gogophotocontest.com/familiesforhope! Whether you’re voting for a spooky skeleton or a dazzling princess, your support brings smiles and hope to families who need it most.
Your bead kit is based on your level of giving. You will receive a HoPE Wristband bead kit for a donation of $25 – $49. Your donation of $50 – $99 will give you a HoPE keychain bead kit including a Never Lose Hope silicone bead and two glow-in-the-dark beads. For a donation of $100 or more you get a DIY HoPE pen kit with four bead-able pens plus accessories and four Never Lose Hope silicone beads.
As always, we deeply appreciate you for caring. Your generous support of our families of children diagnosed with holoprosencephaly makes a huge difference in so many lives.
Posted: June 10, 2025 by lyndot71
Carter Center Ends HPE Services
Posted: June 7, 2025 by lyndot71
Meet Autumn Brandt – Dedicated Mom and FFH Volunteer
Posted: May 21, 2025 by lyndot71
Amy and Brian Rose Discuss Co-Parenting a Child with HPE
Welcome to Families First, the podcast series for, by and about families touched by holoprosencephaly. In this podcast, we’re happy to share the story of a blended family and the lessons in co-parenting a child with HPE Amy and Brian Rose have learned along their family’s journey with daughter Marina.
Posted: March 24, 2025 by Leslie, Sammy's mom
Never Lose HoPE Campaign
We are excited to launch a special fundraising campaign to help you raise awareness for a condition that has affected so many.
For Holoprosencephaly Awareness Week, we commissioned a custom silicone focal bead with the phrase “never lose hope”, and these beads can be used to decorate everyday items that can be worn or used as a conversation starter.
Posted: March 18, 2025 by lyndot71
Spring 2025 HoPE News Newsletter
Posted: February 6, 2025 by lyndot71
Thank you, Donors, For Sharing the Hope in Holoprosencephaly
We at Families for HoPE are sincerely thankful for the donations received last week during “Send the Love,” the micro-giving campaign by Scott Swan and WTHR Channel 13 (NBC) in Indianapolis.
We were honored to be spotlighted as the designated charity for the campaign January 27th through 31st, during which 80 Central Indiana donors gave $5 to $515. The campaign raised $2,675 in support of our mission to empower, educate, support and advocate for all holoprosencephaly families.
“We are thankful to Scott Swan and WTHR Channel 13 and we thank each and every person who contributed to exceeding our campaign goal,” said Families for HoPE Board President Steve Harley. “The outpouring of community support for our mission is heartwarming and inspiring.”
Families for HoPE is the only parent-led organization for families touched by holoprosencephaly worldwide. We support families in Indiana, throughout the United States, and 75 other countries. Each year, Families for HoPE connects more than new 100 families to a compassionate, supportive community of their peers. Our online support community includes 3,200 members and followers on social media.
“The work we do would not be possible without the support of the communities we serve,” said Arika Gates, Board Treasurer. “Every donation counts and every donor’s support is greatly appreciated.”
Families for HoPE has supported children, caregivers and families touched by holoprosencephaly from birth to bereavement since 2006.
Posted: January 27, 2025 by Leslie, Sammy's mom
Send the Love; Share the HoPE
We are honored that Families for HoPE has been spotlighted as the designated charity for this week’s “Send the Love”, a micro-giving campaign by Scott Swan and WTHR Channel 13 (NBC) in Indianapolis. Each week Scott Swan features a small, Central Indiana non-profit organization doing good things in the community, and he asks viewers to make a small, $5 donation to the charity. Viewers can donate by texting the word LOVE to 317-655-5740.
Tune into WTHR this week to see some great photos of kids with HPE and their families and learn more about the campaign.