888-533-4443 Info@FamiliesforHoPE.org 1219 N. Wittfield Street, Indianapolis, IN 46229

Android Users

Do you have an Android device?

We have great news for you!  If you are an AmazonSmile customer, you can now support Families for HoPE, Inc. in the Amazon shopping app on your Android device! Simply follow these instructions to turn on AmazonSmile and start generating donations.

  1. If you have the latest version of the Amazon Shopping App, open the App on your Android device.
  2. View Settings and select AmazonSmile.
  3. Follow the in-App instructions to complete the process.

If you do not have the latest version of the Amazon Shopping App, update your App. Click here for instructions.

(AmazonSmile is not currently available for iOS users, but we have our fingers crossed that it will be available soon!)

Never heard of AmazonSmile?

Amazon donates 0.5% of the price of your eligible AmazonSmile purchases to the charitable organization of your choice.

AmazonSmile is the same Amazon you know. Same products, same prices, same service.  To date, Families for HoPE has received nearly $1,500 from the Amazon Smile Foundation.

Support Families for HoPE by starting your shopping at smile.amazon.com!

You shop. Amazon gives.

Colors of HoPE

Hi!  I’m Sarah from Leicester, England.  I was diagnosed as an adult, in 2016, with Lobar HPE an Rhombencephalosynapsis.  I love to sing and was honoured to be contacted by Leslie from Families for HoPE and asked if I would like to record a song for all of our HoPE children and their loved ones.

I chose Colors of the Wind from Disney’s Pocahontas, mainly because who doesn’t love a Disney song?!  I have always loved the lyrics and the message of this song, and Pocahontas is a feisty, headstrong girl who is not afraid to break with convention and defy expectations of those who don’t “look and think like” her.  She also talks about all of Earth’s creatures being “connected to each other”, which for me describes the worldwide Families for HoPE community that I have come to be so proud to be a part of. I was really excited to record this beautiful song and am extremely proud and honoured to share it with you.  I hope you enjoy it!

Lots of love,
Sarah Brown

 

Database Project

Have you heard of Marie Kondo and her method of organization? Marie Kondo is an organizing consultant and author of the best-selling book, The Life-Changing Magic of Tidying Up.  Her method encourages getting rid of physical items that do not bring joy into your life.

At Families for HoPE, we have nearly 1,000 HPE families in our database, and as we review each record in our database, we recognize that every child and HPE family brings great JOY into our organization, our lives, and our world! We are keeping all of your records because you’re important to us, and we want to stay in touch with you.

As a result, we are embarking on a project to review each database record to ensure that we have the updated and most current information for your family.  Volunteer Theressa Newlin (HPE mom to Tyler from Texas) is coordinating this project, and if Theressa reaches out to you, please know that she is doing so on behalf of Families for HoPE.

If you would like to update your family’s contact information or provide new or additional information related to your child, please feel free to reach out to Theressa at Theressa.Newlin@FamiliesforHoPE.org.

2019 HoPE Dads Retreat

Registration is open for the 2019 HoPE Dads Retreat to be held in Scottsdale, Arizona on October 11, 12, 13 and 14, 2019! This retreat is limited to only 14 dads so don’t delay in registering!

Vision: To bring HPE dads together for a weekend retreat for the purpose of finding and sharing hope through activities for learning, growing, bonding, laughing, and playing.

Roxanne Steele

Written by Roxanne Steele

Growing up in Indiana in the 1970’s and 80’s, I have to admit I never encountered many people who were different.  Yes different races and economic factors but not anyone with any real disability. 

Alone No More

Written by Karina Lehoux

In December 2008, my Zoé was born, and I found out a few days later that she had semi-lobar holoprosencephaly.  As soon as I could, I jumped on my cell (this was before smart phones, just think looking something up in a 1″ x 1″ little screen) to try to find anything I could about HPE.  Shortly after that, I had found out there were three types and that was pretty much all I could find.  No Facebook group I could find, just a little girl in Europe. For about a year, that is all I could find. As a single mom, hospital stays were long and very lonely).

Josh Timmerman

Written by Josh Timmerman

Growing  up, I dreamed of being a race car driver, and when that dream became a reality for me, I knew that I wanted to make a difference and be known as a man and driver who stands for something. In 2006, I met a little boy named Sammy Harley who taught me about having HoPE.

My mom is a pediatric nurse, and Sammy was one of her special patients. After meeting Sammy and being touched by the heartwarming stories of other children with HPE, I offered my race car as a vehicle for helping to raise awareness and inspire HoPE.

In 2012, I joined the board of directors of Families for HoPE, and I currently serve as President of the board of directors.  It is my privilege to lead this organization, and I hope I have made a difference in the lives of these incredible HPE families because they have most certainly made a huge difference in mine.

Jacob and Josh

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