PARENTS FIND HOPE AND PURPOSE, INSPITE OF BEING GIVEN NONE
Members of the medical community still say HPE is incompatible with life, but our stories say otherwise.
Michelle Modula Duffo and her husband Jose had tried to get pregnant for seven years, before turning to IVF. Michelle and Jose were thrilled with the success of the process and looked forward to welcoming their child.
Posted: March 4, 2026 by lyndot71
2026 HPE Awareness Week is March 22nd – March 28th
Connected by HoPE, United by Love At Families for HoPE, we know that the journey with Holoprosencephaly can often feel like navigating a vast and unpredictable sea. This year, our theme—Connected by HoPE, United by Love—is a reminder that no family has to sail alone. The Anchor symbolizes the stability we find in one another; it is …
Posted: March 24, 2025 by Leslie, Sammy's mom
Never Lose HoPE Campaign
For Holoprosencephaly Awareness Week, we commissioned a custom silicone focal bead with the phrase “never lose hope”, and these beads can be used to decorate everyday items that can be worn or used as a conversation starter.
Posted: March 18, 2025 by lyndot71
Spring 2025 HoPE News Newsletter
Posted: March 29, 2024 by lyndot71
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
Danielle Monson calls her two-and-a-half-year-old daughter Raelea a miracle. Raelea was born, after Danielle and her husband Zachary had tried to have a baby for thirteen years.
Posted: March 28, 2024 by lyndot71
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
A dad has special dreams of enjoying good times with their son – from pitching a baseball or football or walking the dog together to hitting the local skateboard park. No dad envisions their son receiving a life-changing diagnosis or almost losing that beloved child twice.
Posted: March 27, 2024 by lyndot71
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
Our daughter Grace Inez was a blue-eyed beauty with long eyelashes, perfect eyebrows, and the cutest dimple in her chin. Her captivating smile lit up every room she was in. Her laugh was contagious, and her sweet voice was music to our ears.
Posted: March 26, 2024 by lyndot71
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
A Life Well Lived, A Legacy of Love Written By Lauren Edwards The Beginning Collins Monroe Brown changed the world more in her few short years on earth than many of us can even hope to in an entire lifetime. Collins was our first child and was born January 27, 2019. At the 20-week anatomy …
Posted: March 25, 2024 by lyndot71
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
PARENTS FIND HOPE AND PURPOSE, INSPITE OF BEING GIVEN NONE
Members of the medical community still say HPE is incompatible with life, but our stories say otherwise.
Michelle Modula Duffo and her husband Jose had tried to get pregnant for seven years, before turning to IVF. Michelle and Jose were thrilled with the success of the process and looked forward to welcoming their child.
Posted: March 19, 2024 by Leslie, Sammy's mom
2024 Holoprosencephaly Awareness Week
Holoprosencephaly Awareness Week is March 23-31, 2024, and we hope that you will be a part of making it a huge success! This year’s awareness week was inspired by Willy Wonka and the Chocolate Factory.
Posted: February 28, 2024 by Leslie, Sammy's mom
HoPE U T-Shirts – Order by March 8
Order by MARCH 5 to receive in time for HPE Awareness Week