Provider Resources
Dear Healthcare Provider,
Welcome to the Families for HoPE website; we are pleased that you have landed on this page. We have collected resources that will be useful to you as a care provider to a patient with holoprosencephaly. If you do not find what you are seeking, please contact us at 888-533-4445.
READING MATERIALS
Adolescents and Adults with Holoprosencephaly
Management of Children with HPE
Parental Perspectives on Living with a Child with HoPE
Ongoing Education and Awareness
We recognize the critical importance of ongoing education and awareness within the medical community, and we kindly urge you to facilitate an opportunity for your colleagues and caregivers to convene and share their invaluable experiences with holoprosencephaly. In fostering this dialogue among peers and clinical staff, we hope you can collectively deepen your understanding of holoprosencephaly and enhance your capacity to deliver exemplary patient care. Here are some questions to aid your discussion among peers and clinical staff:
- Have you ever encountered a patient(s) with Holoprosencephaly?
- If so, did you feel you had adequate training or education about HPE prior to this patient?
- Was there anything about this patient that surprised you?
- What was most challenging to you in the clinical care of this patient?
Families for HoPE can supply written resources for your office or hospital library. Additionally, if you would like someone to speak to your caregivers, we have HPE families who are willing to share the stories of their journeys with HPE. Contact us via email at info@FamiliesforHoPE.org or via phone at 888-533-4445 to learn more.
Provider Resources
Dear Healthcare Provider,
Welcome to the Families for HoPE website; we are pleased that you have landed on this page. We have collected resources that will be useful to you as a care provider to a patient with holoprosencephaly. If you do not find what you are seeking, please contact us at 888-533-4445.
READING MATERIALS
Adolescents and Adults with Holoprosencephaly
Management of Children with HPE
Parental Perspectives on Living with a Child with HoPE
Ongoing Education and Awareness
We recognize the critical importance of ongoing education and awareness within the medical community, and we kindly urge you to facilitate an opportunity for your colleagues and caregivers to convene and share their invaluable experiences with holoprosencephaly. In fostering this dialogue among peers and clinical staff, we hope you can collectively deepen your understanding of holoprosencephaly and enhance your capacity to deliver exemplary patient care. Here are some questions to aid your discussion among peers and clinical staff:
Families for HoPE can supply written resources for your office or hospital library. Additionally, if you would like someone to speak to your caregivers, we have HPE families who are willing to share the stories of their journeys with HPE. Contact us via email at info@FamiliesforHoPE.org or via phone at 888-533-4445 to learn more.