PARENTS FIND HOPE AND PURPOSE, INSPITE OF BEING GIVEN NONE
Members of the medical community still say HPE is incompatible with life, but our stories say otherwise.
Michelle Modula Duffo and her husband Jose had tried to get pregnant for seven years, before turning to IVF. Michelle and Jose were thrilled with the success of the process and looked forward to welcoming their child.
Posted: June 13, 2024 by lyndot71
Two Vibrant, Young People with HPE Join Us as Ambassadors for HoPE
Families for HoPE, Inc. is honored and grateful to have two young people with HPE join the ranks of our organization’s Ambassadors for HoPE to help raise awareness of holoprosencephaly.
Posted: June 13, 2024 by lyndot71
AMBASSADOR FOR HoPE – Kal-El Wright
Seventeen-year-old Kal-El Wright enjoys many things, including going to school.
Posted: June 13, 2024 by lyndot71
AMBASSADOR FOR HoPE – Brianna Bixenman in Her Own Words
Hi everyone. My name is Brianna. I was born with lobar Holoprosencephaly.
Posted: March 29, 2024 by lyndot71
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
Danielle Monson calls her two-and-a-half-year-old daughter Raelea a miracle. Raelea was born, after Danielle and her husband Zachary had tried to have a baby for thirteen years.
Posted: March 28, 2024 by lyndot71
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
A dad has special dreams of enjoying good times with their son – from pitching a baseball or football or walking the dog together to hitting the local skateboard park. No dad envisions their son receiving a life-changing diagnosis or almost losing that beloved child twice.
Posted: March 27, 2024 by lyndot71
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
Our daughter Grace Inez was a blue-eyed beauty with long eyelashes, perfect eyebrows, and the cutest dimple in her chin. Her captivating smile lit up every room she was in. Her laugh was contagious, and her sweet voice was music to our ears.
Posted: March 26, 2024 by lyndot71
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
A Life Well Lived, A Legacy of Love Written By Lauren Edwards The Beginning Collins Monroe Brown changed the world more in her few short years on earth than many of us can even hope to in an entire lifetime. Collins was our first child and was born January 27, 2019. At the 20-week anatomy …
Posted: March 25, 2024 by lyndot71
Celebrating HPE Awareness Week, Sharing Our Families’ Stories
PARENTS FIND HOPE AND PURPOSE, INSPITE OF BEING GIVEN NONE
Members of the medical community still say HPE is incompatible with life, but our stories say otherwise.
Michelle Modula Duffo and her husband Jose had tried to get pregnant for seven years, before turning to IVF. Michelle and Jose were thrilled with the success of the process and looked forward to welcoming their child.
Posted: November 6, 2022 by Leslie, Sammy's mom
Jaxsen Plays Football
Jaxsen Grinter loves football, and this all-inclusive flag football program at an elementary school in Kansas City is a perfect way for Jaxsen to play the sport that he loves
Posted: October 17, 2020 by Leslie, Sammy's mom
Florida Teen with HPE Receives Award
Joshua Howard, age 16, was selected by St. Petersburg College to receive the Dr. Vilma Fernandez-Zalupski Latino Academic Excellence Award for 2019-2020. This prestigious award recognizes students in grades 10 through 12 with a grade point average of 3.0 or above.