888-533-4443 Info@FamiliesforHoPE.org 1219 N. Wittfield Street, Indianapolis, IN 46229

NIH Research Study

National Institutes of Health Study on Environmental Determinants of Holoprosencephaly

We understand only a fraction of the causes of holoprosencephaly and what
leads to the wide spectrum of clinical features seen in patients with
holoprosencephaly. In this environmental study, we are trying to better
understand the different factors that can contribute to holoprosencephaly and
its presentation that often varies from patient to patient.

What does the study entail?
Filling out out a 45-minute online survey

What does the survey ask about?
The survey asks about your pregnancy and the three months before
pregnancy.  Please go to http://hope.ctss.nih.gov to get more information.

We are actively recruiting to reach our study goal of 200 participants!

If you are interested in filling out the survey:

  1. Contact Yonit Addissie at yonit.addissie@nih.gov or 301-402-5812
  2. Then, go to http://hope.ctss.nih.gov

*There is no compensation for this study