A child I love has HPE

Scroll down for information and materials to aid you in your journey with HPE

One Comment on “A child I love has HPE

  1. Hello my name is Anna, my daughter who is 5 months was diagnosed with Holoprosencephaly a few hours after birth (I heard there are 4 different ones I just don’t know which one she has) , she is my first child she was also born with a cleft lip and palate, was diagnosed with epilepsy and Diabetes Insipidus a month after birth. I along with my family are very new to these medical diagnosis as she has been the first one in our family with these medical diagnosis. We were told we could get an HPE onesie once we registered but I haven’t came across the link 🙂 Would love to get more information 🙂 Thanks for your time :))

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