Our hearts and prayers go out to Matt and Julie Oldendick and their family as we learned that their sweet daughter, Lula, passed away on Wednesday morning. Lula was 8 1/2 years old. Below are some photos of Lula from the 2008 HPE Family Conferences. We will miss you, Lula.
Some Kid
Throughout my journey in the HPE world, I have had the privilege to personally meet many individuals with HPE. So often, I find that I don’t even have the words to adequately describe the encounter because I’m so humbled by the experience. I can recite the definition of holoprosencephaly forward and backward in my sleep; …
2006 HPE Family Conference
Flackback Friday – April 2006 HPE Family Weekend and Conference Indianapolis, Indiana, USA April 21-23, 2006 Co-sponsored by Families for HoPE, Inc. and the Carter Centers at Kennedy Krieger Institute The Highlights The HPE Family Weekend & Conference, co-sponsored by Families for HoPE and the Carter Center at Kennedy Krieger Institute, was truly a weekend …