In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE. Held biennially, the conference is a collaborative endeavor among Families for HoPE, the Carter Centers for Research in Holoprosencephaly, Texas Scottish Rite Hospital for Children and National Institutes …
Posted: October 4, 2021 by Leslie, Sammy's mom
Facebook
Today, Facebook experienced a service outage which affected the online support groups sponsored by Families for HoPE. Please remember that you may contact Families for HoPE at anytime via email at info@FamiliesforHoPE.org or via phone at 888.533.4443. HoPE is only a phone call or email away, and we are here to help! Also, don’t forget …
Posted: November 30, 2019 by Leslie, Sammy's mom
My friend, Rhonda
I was a baby when Rhonda came onto my life, so I don’t remember when I met her, but she was my first BFF. Growing up with Rhonda had a profound effect on my life, my personality, and my heart.
Posted: February 25, 2017 by Leslie, Sammy's mom
Embrace the Journey
Life with HPE is a journey
Posted: February 24, 2017 by Leslie, Sammy's mom
Journey of HoPE to Dallas
In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE. Held biennially, the conference is a collaborative endeavor among Families for HoPE, the Carter Centers for Research in Holoprosencephaly, Texas Scottish Rite Hospital for Children and National Institutes …
Posted: December 1, 2015 by Leslie, Sammy's mom
Giving Tuesday
Today is giving Tuesday. Please consider of becoming an Anchor of HoPE for a child with Holoprosencephaly. Through reoccurring donations Families for HoPE can continue supporting and spreading awareness of Holoprosencephaly. Please share this photo and ask all your family and friends to become an Anchor of HoPE.
Posted: November 23, 2015 by Leslie, Sammy's mom
2016 Conference Announcement
Families for HoPE announces exciting news
Posted: November 8, 2015 by Leslie, Sammy's mom
Participate
It’s the time of year when many companies are participating in United Way giving campaigns. Did you realize that you may be able to donate to Families for HoPE through your annual United Way workplace giving campaign? Often times, donors are allowed to designate a specific 501(c)(3) organization to receive funding. Remind your family, friends …
Posted: November 7, 2015 by Leslie, Sammy's mom
Someone else for a day
Halloween, the day my little CharlieDawn can be someone else for a few tiny hours, or is it really for me? My dream for everyone around us not to notice all her extra pieces and parts she must have to just survive. It’s the day where most people can not help but to stop and …
Posted: September 27, 2015 by Leslie, Sammy's mom
Our mascot needs a name . . .
Before Families for HoPE was formed in 2006, there’s a character/animal that has served as our unofficial mascot in the HPE community, and that mascot is the frog. It all started following the passing of Harrison Stauft, forever known as the little boy who loved frogs–specifically, five green and speckled frogs. This was a song …
Posted: July 3, 2015 by Leslie, Sammy's mom
July 3 – Racing for HoPE 2015