Category: Leslie


Embrace the Journey

Life with HPE is a journey

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Journey of HoPE to Dallas

In July 2016, over 70 HPE families embarked on a journey from all corners of the U.S. to Dallas, Texas for the 2016 Family Conference on HPE.  Held biennially, the conference is a collaborative endeavor among Families for HoPE, the…

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Giving Tuesday

Today is giving Tuesday. Please consider of becoming an Anchor of HoPE for a child with Holoprosencephaly. Through reoccurring donations Families for HoPE can continue supporting and spreading awareness of Holoprosencephaly. Please share this photo and ask all your family and…

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2016 Conference Announcement

Families for HoPE announces exciting news

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Participate

It’s the time of year when many companies are participating in United Way giving campaigns. Did you realize that you may be able to donate to Families for HoPE through your annual United Way workplace giving campaign? Often times, donors…

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Someone else for a day

Halloween, the day my little CharlieDawn can be someone else for a few tiny hours, or is it really for me? My dream for everyone around us not to notice all her extra pieces and parts she must have to…

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Our mascot needs a name . . .

Before Families for HoPE was formed in 2006, there’s a character/animal that has served as our unofficial mascot in the HPE community, and that mascot is the frog.  It all started following the passing of Harrison Stauft, forever known as…

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July 3 – Racing for HoPE 2015

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2016 Family Conference on Holoprosencephaly

Save the dates of July 12-15, 2016 for the next Family Conference on Holoprosencephaly sponsored by Families for HoPE, Inc. in collaboration with the Carter Centers for Brain Research in Holoprosencephaly and Related Malformations! Families for HoPE is thrilled to…

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Reality of HoPE

I shared this on my Facebook page today, and several have asked me to share it… I know that it can be uncomfortable to be my Facebook friend especially when I share updates on children who are sick or dying….

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2014 Family Conference on HPE

The 2014 Family Conference on HPE was held in Dallas, Texas on October 2-4.  Held at the Texas Scottish Rite Hospital for Children Conference Center, over 60 HPE families gathered for the conference sponsored by Families for HoPE in collaboration…

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Bye!

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Songs for your journey of HoPE

Music often helps us get through different phases in our lives. We want to know what kind of music HPE families listen to, as they experience different moods. We have created some playlists on the Families for HoPE Pinterest board for different moods/themes!…

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Jacqui’s Playlist

Music Therapy for Jacqui written by Maury Smith One of the special things about my 17-year old daughter, Jacqueline, is the effect that music has on her.  She loves most songs but there are a select few that cause her…

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Meet Maddox

Maddox’s parents–Philip and Hailey Brewer–have shared Maddox’s story in honor of Holoprosencephaly Awareness Week.  Check it out by clicking on the photo below . . .

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