Board of Directors
2021 Officers and Directors
Becky Wilson, President (2021)
I am the mother of three children, Charlie, Breanna and Jack, and live in Crandon, Wisconsin with Ken, my husband of 24 years. Born in 2004, Jack was diagnosed with lobar HPE. Through this journey with Jack, I have discovered my passion, and today, I’m employed by a nonprofit organization in my community serving individuals with disabilities. From 2010-2013, I served my first term on the board of directors of Families for HoPE, and my current board term began in 2015. My husband Ken and son Charlie both race off-road trucks and proudly display the Families for HoPE logo on their trucks to raise awareness of HPE. You may contact me at Becky.Wilson@FamiliesforHoPE.org.
Roxanne Steele, Secretary (2015 to present)
From our home in Richmond, Indiana, my husband Brian and I are the parents of four children. Our youngest daughter, Rachel, was born in 2002 with semi-lobar HPE. I was closely monitored throughout my pregnancy because I was expecting twins; however, we did not learn of Rachel’s HPE until after she was born. The first few days of her life involved a lot of physicians, unfamiliar medical terms and many fears for her future and our family. Sadly, Rachel passed in January 2015 but lived nearly 13 years continually surrounded by the love of her sisters Mariah and Sara and twin brother Nathan. Today, I am the Lead Teacher at Trueblood Preschool/Richmond Friends School. It is because of Rachel that I am one of the founding directors of Families for HoPE, and I have served as Secretary of the board of directors since 2015. You may contact me at Roxanne.Steele@FamiliesforHoPE.org.
Leslie Harley, Treasurer (2011 to present)
My son Samuel Aaron Harley (“Sammy”) was born with semi-lobar holoprosencephaly in 2003. My husband Steve and I learned of Sammy’s diagnosis during a prenatal ultrasound at 24 weeks gestation, and like the stories of many others, we were given very little hope for his survival. We were blessed to have Sammy in our lives for nearly 5 years, and we treasure the memories we created with him. Although Sammy passed away in January 2008 following a critical illness, he is never far from my thoughts and continues to inspire me each and every day. It is because of Sammy that I am one of the founding directors of Families for HoPE, was a past president (2006-2010), and I currently serve as Treasurer of the board of directors. In addition, I work as a Senior Executive Assistant at Community Health Network, and I try to blog about life with Sammy when I can. You may contact me at Leslie.Harley@FamiliesforHoPE.org.
Cheryl Lehman, Director
My husband, Bill, and I have been blessed with three children—Kloie, Kyra and Kollin. My HoPE journey began in 2001 when Kloie was born with semi-lobar holoprosencephaly, and we have grown so much in the last 20 years as individuals and as a family because of the blessings (and challenges) we have experienced with our daughter. I joined the Families for HoPE board in 2015 with the HoPE of helping other families navigate this very special life that none of us expected. We are a family! Please feel free to contact me at Cheryl.Lehman@FamiliesforHope.org.
Families for HoPE is seeking qualified individuals to serve on its board of directors. For more information, please contact board President Becky Wilson at Becky.Wilson@FamiliesforHoPE.org.